Nina Kaye

Nina Kaye

Charity song

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p][b]Did you know...[/b][/p][p]It’s estimated that over 130,000 in the UK are living with Multiple Sclerosis (MS), and that nearly 7,000 people are newly diagnosed each year.[/p][p]About 100,000 adults and 20,000 children in the UK have an illness called Functional Neurological Disorder (FND). It’s badged as ‘the most common condition you’ve never heard of’, because the awareness is so poor and research is underfunded.[/p][p]MS is a degenerative autoimmune condition that affects the brain and spinal cord, where the coating that protects our nerves (myelin) is damaged. FND is where there’s a problem with the messaging between the brain and the body. Both conditions can have a devastating impact on people’s lives.[/p][p]I have first-hand experience of this impact, so I’m sharing my story and raising money for charity through my charity song, Take A Moment, in the hope that this will help make lives better for people living with MS and FND in the future. [/p][p][br][/p][p][b]My story [/b][/p][p]In 2014, my body failed me in incomprehensible ways: I experienced extended episodes of uncontrollable shaking and tremors, difficulty walking, loss of balance, faltering speech. My vision and hearing were distorted; I lost my ability to concentrate, couldn’t find words, could barely eat and I would fall flat on my face several times a day. That was only part of the picture.[/p][p]After several months, a Neurology Consultant eventually diagnosed me with a condition called Functional Neurological Disorder (FND). Simply put, my central nervous system isn’t working properly and there’s a problem with the messaging between my brain and my body. FND can range from very mild (e.g. weakness in one leg) to severe, with multiple physical, cognitive and sensory symptoms (unfortunately the version I have).[/p][p]The good news is that it isn’t a degenerative condition, though it can be as physically debilitating and life limiting as MS and other neurological diseases. The bad news is that it’s a condition for which there is no known cure and support for sufferers is underfunded. Some people get better and others don’t. Some end up in wheelchairs, on incapacity benefits, unable to work or have any quality of life.[/p][p]I’m in the middle. I’ve managed to rehabilitate enough to have a reasonable (but somewhat limited) quality of life, but every day I’m battling varying levels of chronic pain, fatigue, breathlessness and an overreactive central nervous system, among other symptoms. There are still days when I can have difficulty walking or with my balance, but thankfully these are rarer now – and I hope they stay that way.[/p][p]As far as I’m concerned, I’ve been lucky. But I can see how, without the right support networks, it would be easy for someone with a chronic illness to become isolated, unemployed, and if things got really bad, homeless.[/p][p][br][/p][p][b]My charity song[/b][/p][p]Take a Moment is a song I wrote (with help from a talented musician called Willie Glass) when I was a good way through my rehabilitation. It’s a recognition of the struggles many people experience in life, while others live theirs as if on autopilot. It’s a message to be kind, to care and to open our eyes to what’s going on around us – and to make a difference where we can.[/p][p]Since writing the song, it has been my goal to do something with it. I’ve used my own money to get it recorded professionally, and the difference I would like to make is to raise some money through music streaming and downloads to support two very important charities: the MS Society and FND Hope UK.[/p][p]During the process of receiving my diagnosis, I spent a short time on a neurology ward and I witnessed some of the saddest, most heart wrenching sights I’ve ever seen. It really is one of the cruellest types of illness a person can suffer.[/p][p]I've released Take a Moment in the music charts worldwide and it's available for download and streaming on [url=https://songwhip.com/ninakaye/take-a-moment]all major music platforms[/url]. I’d hugely appreciate it if you’d consider downloading it and/or adding it to your streaming playlist – and please spread the word! All proceeds from the song will be split equally between the MS Society and FND Hope UK.[/p][p]You can also make a more substantial donation on this page. The goal is to raise as much money as possible for these important causes. [/p][p]Finally, if you’re interested in knowing more about MS and FND and the life-limiting impact they can have, you can read about them on the [url=https://www.mssociety.org.uk/]MS Society[/url] and [url=https://fndhope.org/]FND Hope[/url] web pages.[/p][p]Thank you for everything you do.[/p]

Event

Personal Challenge Date

05 Aug 2021

Supporters


Sep 1, 2021

Jan and Hugh

Best wishes with your fundraising. Jan and Hugh

£40.00


Aug 10, 2021

Anonymous

£10.00

plus £2.50 Gift Aid


Aug 10, 2021

Christian

£50.00


Aug 9, 2021

Mairibeth

So sorry you’re going though this, but congratulations on the single! Fantastic!


Aug 8, 2021

Lorna Gordon

Love the song it’s fab 💕🤗

£100.00


Aug 7, 2021

Fiona

So proud of you, Nina! I hope you raise lots of money for this really important cause.

£15.00


Aug 7, 2021

Kimmy

£20.00

plus £5.00 Gift Aid


Aug 6, 2021

Anonymous

£20.00

plus £5.00 Gift Aid


Aug 6, 2021

Anita Faulkner

You're an incredible, hugely talented lady. Good luck with your fundraising. Xx


Aug 6, 2021

Angels David Amy and Alex

Well done! Good luck with it xxx

£15.00

plus £3.75 Gift Aid

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