Ian Evans

Ian Evans

Ian Evans's fundraising page

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]In 2017 I will be running the London marathon on behalf of my friends' son Oskar, who is an inspiration to all and a hero in every sense of the word...here is his story.[/p][lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]I'll write something now mate and you can crop bits and add your own etc. [lt]/div[gt] [lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]Óskar Louis Killa was born in Reykjavik, Iceland on May 21st 2015. 1 week after birth he was diagnosed with a syndrome called Moebius Syndrome. [lt]/div[gt] [lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]Moebius syndrome is a extremely rare syndrome and affects roughly every 1 in a million children.[lt]/div[gt] [lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]The 6th and 7th cranial nerves are affected which unables the movement of the eyes and blinking, small tongue which causes problems eating, weakness of the neck, shoulder and arm muscles. [lt]/div[gt] [lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]The syndrome also affects Oskar's facial expressions. The ability to smile, laugh and to frown his eyebrows. Óskar was also born with abnormalities in his hands, Webbed fingers and some under developed fingers.[lt]/div[gt] [lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]Having recently had his eye operation, Óskar is now waiting on 2 separate operations on his hands.[lt]/div[gt][p]Óskar Louis Killa was born in Reykjavik, Iceland on May 21st 2015. 1 week after birth he was diagnosed with a syndrome called Moebius Syndrome. Moebius syndrome is an extremely rare syndrome and affects roughly every 1 in a million children.[/p][p]The 6th and 7th cranial nerves are affected which unables the movement of the eyes and blinking, small tongue which causes problems eating, weakness of the neck, shoulder and arm muscles.[/p][p]The syndrome also affects Oskar's facial expressions. The ability to smile, laugh and to frown his eyebrows. Óskar was also born with abnormalities in his hands, Webbed fingers and some under developed fingers.[/p][p]Having recently had his eye operation, Óskar is now waiting on 2 separate operations on his hands.[/p][p]Your donations can and will make a difference not only to Oskar but to all so please donate and make that difference happen.[/p][p]For more information please visit their website via the following link http://www.moebiusresearchtrust.org/[/p][p]Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this.[/p][p][/p]

Supporters


May 2, 2017

Claire H

Well done Ian.

£10.00

plus £2.50 Gift Aid


May 2, 2017

Anonymous

£20.00

plus £5.00 Gift Aid


May 2, 2017

Bev and Christine

Well done Ian!

£15.00


Apr 27, 2017

Marie and Jayne

£40.00


Apr 27, 2017

Julie Lloyd

You are an inspiration Ian. Well done! I hope that Oskar and the family get all the support they need x


Apr 19, 2017

Sarah Morris

Good Luck Ian!!, well done in supporting such an amazing cause.

£10.00

plus £2.50 Gift Aid


Mar 24, 2017

Anonymous

£25.00


Jan 8, 2017

Laura williams

Good Luck Ian x

£50.00


Nov 3, 2016

Anonymous

Boxing night money

£380.00


Oct 29, 2016

Anonymous

Ticket sales

£175.00

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