Bhavnita Patel

Bhavnita Patel

Dash Duchenne

For Elliot's Endeavours Link opens in a new window

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]Hi everyone, thank you for taking the time out to support us in our mission to help our dear friend Lucy and her family. We have decided to take on the 'Duchenne Dash at home' challenge which will involve us, as a family, walking, running, swimming, scooting, cycling or in some cases crawling 150km in 6 weeks. We want to help as much as we can and after reading Lucy's story below, we hope you will also want to help make a difference. [/p][p]Lucy's story: [/p][p]"Our son Elliot has been diagnosed with Duchenne Muscular Dystrophy (DMD). For those who haven't heard of it, don't worry, neither had I & neither had some medical professionals. It's taken years to get Elliot diagnosed (not helped by Covid). [/p][p]DMD is rare genetic disorder, primarily found in boys, which means Elliot can't produce a protein called dystrophin, vital for muscle growth. Without dystrophin, the muscle cells waste away & die & once they are gone, they are gone. [/p][p]Typically, boys with DMD lose the ability to walk between the ages of 8-12, they become paralysed from the neck down by their late teens & eventually the muscles around thier lungs & heart cease to function. Life expectancy is early 20's. [/p][p]DMD is 100% fatal, treatments are ineffective & there is no cure. [/p][p]Naturally, Will, myself & our family are completely crushed. Although Elliot is no different today than he was 3 months ago, our future as we thought we knew it (the future that we have worked so hard to build) has been ripped from underneath us & a very different, challenging, heartbreaking one stands before us. [/p][p]Having to watch Elliot's health deteriorate over the years & the thought of having to explain to him why he won't be able to join his friends in activities that we so often take for granted (like playing sports, riding his bike down the park etc) is no doubt going to be the hardest conversation il ever have in my life & even now, just the thought of it brings me to tears. [/p][p]But in amongst this darkness, there is a glimmer of hope. Around the world there is a global army of scientists trying to find suitable treatments & even a cure for Duchenne. [/p][p]Will & I & our families will be devoting our lives to raising awareness & fundraising for Duchenne. The charity we have chosen is Duchenne UK, a charity founded by 2 mothers of Duchenne boys who have already made huge waves in the last ten years trying to get clinical trials into approved treatment for the NHS. Clinical trials can take anything between 15-20 years to get approved. Time myself & other parents just don't have. Duchenne UK are working hard to make clinical trials available for all Duchenne patients to participate in should they wish. All the money raised for Duchenne UK goes back into clinical trials. [/p][p]The best things about this cause, is that Will & I get to choose what clinical trials the money we raise goes into, which means you actually get to see where your money goes & see first hand how you are changing a little boys life."[/p][p][br][/p][p]Thanks from all of us again. You are all amazing![/p][p]Bhavnita, Nelly, Shay, Nico and Mya[/p]

Other ways to support Bhavnita's fundraising effort

Turn your unwanted stuff into donations

Donate your stuff

See how it works

together withziffit.com logo

Earn free donations when you shop

Shop with heart

See how it works

together withkindred logo

Supporters


Jul 18, 2021

Pukka, Kaushy, Rishi and Dylan

Well done

£10.00

plus £2.50 Gift Aid


Jul 6, 2021

Pushpaben and Sam

Great effort Love from Mum and Dad

£20.00

plus £5.00 Gift Aid


Jul 5, 2021

Niki

Inspirational x

£10.00

plus £2.50 Gift Aid


Jul 3, 2021

Bev Johns

Well done to you all! Bev and Mark. Xx

£25.00


Jul 3, 2021

Nelly, Bhavnita , Shay, Nico and Mya

£50.00

plus £12.50 Gift Aid


Jul 3, 2021

Mohan and Jeli

Well Done Mum and Dad

£20.00


Jul 3, 2021

Ratinder Riyait

£5.00


Jul 3, 2021

Bec Varley

£5.00


Jul 2, 2021

Nim, Krunal, Vivaan, Niya

Well done for all your efforts in raising awareness and money towards a great cause! Very proud of you both and the kids for being so committed towards your goal!

£20.00

plus £5.00 Gift Aid


Jul 2, 2021

Rebecca Martin

Good luck!

£5.00

plus £1.25 Gift Aid

Back to Top