Our site needs cookies

We need cookies to help you sign in, create a fundraising page and donate. If you want to fundraise or donate on our site, you will need to turn on cookies How to turn on cookies.

It looks like you are trying to access a charity account.

Please click here for the charity sign in page. If you are not trying to access a charity account, please contact us.

Profile

Paul Cox

Duchenne Dash

Challenge complete

Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]Update 5th June 2019[/p][p]Well here it is.. just a few days now till we set off on the Dash. Good news is that thanks to all your generosity and help of my company, I have made the initial fundraising target! Bad news, I am still several kg heavier than I wanted to be come the time of the ride and whilst I have done one long ride (105km), everything else has still been around the 50km mark, so 300+km in 24hrs is going to be painful...[/p][p]Weather for Friday afternoon here in UK looks bad currently, so I am expecting to get wet on the UK leg. However the run through France to Paris during Saturday looks dry and fine, so hopefully we will have a great ride.[/p][p]Just a reminder of why I am doing this:[/p][p][img]https://gallery.mailchimp.com/video_thumbnails_new/32a377206fbeaf885a43f3195abadb94.png" width="564[/img][/p][p]Thanks to you all[/p][p]Paul[/p][p][b]Update 11th April 2019:[/b][/p][p]Great news - my employer has agreed to match all the donations receive thus far, so this means (at todays exchange rates) that we will get another £1,965 in the kitty this week![/p][p]Training is going OK but the longest single ride to date is still only 63km. Most rides I am doing are around 40-50km so need to step up the game soon. Not helped last weekend by a family allowing their dog to wander randomly into my path just as I got to the top of a long hill. Resulted in a hard fall still clipped in, so have the bruises to prove i ![/p][p]Thanks so much to all who have donated. You are all very generous and means I am now breaking through my minimum funding requirement. Thank you so much[/p][p]Paul[/p][p][b]Original entry[/b][/p][p]OK - so it is now official since I've paid my entry fee and set up the fundraising page! I have never owned a road bike (until now) and frankly always wondered what all these people in lycra saw in toiling along the road on a bike on a Sunday morning... now I am one of them![/p][p]This is a massive challenge for me and will involve a great deal of effort, time and monetary commitment on my part, so please help me out by making it all worthwhile and smash my fundraising target! Many have done London to Paris by bike but to do it in 24 hrs as your first (and probably only!) long distance ride, is going to take another level![/p][p]I joined Sarepta Therapeutics in February 2018 and so am involved as part of the pharmaceutical industry in many activities to try to find treatment options for Duchenne. However I decided to also try to do something directly personal in 2019 to support those dealing with Duchenne. Hence "The Dash!" [/p][p]In the last year, I have been blown away by what I have seen of the bravery and commitment of the community of people brought together by this terrible condition. I have three children and I cannot begin to imagine how it must feel to be given the diagnosis of DMD for your son, so I'm in even more admiration for those who decide, despite the situation, to try to do something about it.[/p][p]Duchenne Muscular Dystrophy is a currently incurable, inexorably progressive, deteriorating condition, that eventually affects every muscle in the body, including the heart and the muscles that enable breathing. Boys lose the ability to walk in their teens or earlier and despite improvements in NHS care and support in recent years, will succumb to the disease sometime in their 20s or 30s. Along with some other fantastic Duchenne patient charities, Duchenne UK has made big strides in supporting and initiating medical research, patient care and UK clinical trial capacity to name but a few. There is also some hope for the future of treatment, so the need is now more than ever to keep the momentum going..[/p][p]If you want to see more details of what Duchenne UK are all about and where your money will go, please see their website [url=http://www.duchenneuk.org]www.duchenneuk.org[/url] and see this video: [url=https://youtu.be/e2uKGoWO0K4]https://youtu.be/e2uKGoWO0K4[/url][/p][p]Speaking of momentum...maybe it is time for me to get in some training. Now is the time for you to donate![/p][vmgvideo class="ql-video" frameborder="0" allowfullscreen="true" src="https://www.youtube.com/embed/CBniUzZ3sBU?showinfo=0&rel=0&iv_load_policy=3"][/vmgvideo][p][br][/p]

Share Paul's story

Event

Duchenne Dash

Duchenne Dash

07 Jun 2019

Supporters

Jun 5, 2019

Lisa Moore-Ramdin

Hey Paul, very impressive challenge you crazy man! But for a very worthy cause indeed. All the best and keep safe on the day!

£30.00 plus £7.50 Gift Aid

Jun 4, 2019

Anonymous

Made it!

£32.00 plus £8.00 Gift Aid

Jun 1, 2019

Andrew Danquah

Good luck Paul!

£20.00 plus £5.00 Gift Aid

May 12, 2019

Linda Willmor

£30.00 plus £7.50 Gift Aid

May 12, 2019

John Dunkley

£20.00 plus £5.00 Gift Aid

May 4, 2019

Phil J

Good luck!!! Make sure to protect votre derriere!!! Ouch...

£20.00 plus £5.00 Gift Aid

Apr 11, 2019

Sarepta Therapeutics

Good luck Paul!!

£1913.21

Apr 7, 2019

Pete

I know what you'll go through to achieve this. But I know it's far less than the people you're trying to help. Well done sir!

£100.00 plus £25.00 Gift Aid

Apr 1, 2019

Neil Dugdale

Awesome challenge Paul; good luck

£20.00 plus £5.00 Gift Aid

Mar 30, 2019

Daniel Risson

All the best Paul! Great cause.