RTS Active

Jack wyatt
Lauren wyatt

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

Team story

[p]Join us and get active for RTS [/p][p] [/p][p]Lockdown has put a stop to many of our usual activities and we want to turn that around and get everyone up and moving with the RTS Active challenge. [/p][p]During the Easter weekend children and adults with Rubinstein-Taybi Syndrome (RTS), along with their friends and family are raising awareness of the condition. We are inviting everyone to choose an activity and set a goal which can be as challenging as you decide. Skip, hop, roll, walk, run, cycle…whatever you can do to raise much needed funds to help the RTS UK Support Group. [/p][p]To register to take part, email [url=http://mailto:info@rtsuk.org.uk]info@rtsuk.org.uk[/url] and start your fundraising, why not join with family members to take on a challenge together or with friends to tackle sections of a long distance run or bike ride? [/p][p] [/p][p]Some inspiration: [/p][p]This is Jack, he is 6 years old and has RTS. Last year he rode 3km on his balance bike, with lots of encouragement from Mum and Dad and collected sponsorship money for his great achievement. [i] [/i][/p][vmgvideo class="ql-video" frameborder="0" allowfullscreen="true" src="https://www.youtube.com/embed/Rp_vsyEK1WY?showinfo=0&rel=0&iv_load_policy=3"][/vmgvideo][p][br][/p][vmgvideo class="ql-video" frameborder="0" allowfullscreen="true" src="https://www.youtube.com/embed/AT7TIw7LBAw?showinfo=0&rel=0&iv_load_policy=3"][/vmgvideo][p][br][/p][p] [/p][p]What is RTS: [/p][p]RTS is an extremely rare genetic condition, occurring in around one in 125,000 live births. RTS is characterized by typical facial features, microcephaly, broad thumbs and first toes, intellectual disability, and postnatal growth delay. Additional features of the disorder can include eye abnormalities, heart and kidney defects, dental problems, and obesity. [/p][p]The syndrome may be caused by a mutation in the CREBBP or EP300 gene, or as the result of a very small loss (microdeletion) of genetic material from the short (p) arm of chromosome 16. In some people with RTS, the cause is unknown. [/p]
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Event

Personal Challenge Date

19 Mar 2021

Supporters


Apr 7, 2021

Mandy

Well done Ella xx

£10.00

plus £2.50 Gift Aid


Apr 6, 2021

Dale

Brilliant work

£30.00

plus £7.50 Gift Aid


Apr 4, 2021

Anonymous

Ella, you're amazing! Love Grandma. X

£20.00


Apr 4, 2021

Jane Guest

£15.00

plus £3.75 Gift Aid


Apr 3, 2021

The Pope family

Go Ella and friends. You are amazing 👍💪

£15.00

plus £3.75 Gift Aid


Apr 3, 2021

Becky Woodley

Well done Ella! You are amazing x


Apr 2, 2021

Sue and Pete

Reach for the Stars Ella .... much love and big hugs Sue and Pete xx

£30.00


Apr 2, 2021

Iva F

Well done Ella 💪🥰💪🥰

£10.00

plus £2.50 Gift Aid


Apr 2, 2021

Julia Clark

Well done Ella!

£10.00


Apr 2, 2021

Jo Arrighi

Go Ella!

£10.00

plus £2.50 Gift Aid

Jack wyatt

Jack wyatt

Lauren wyatt

Lauren wyatt

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