Race for SRF

Chris Pitcher

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

Team story

[p][/p][lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]This weekend I will be taking part in Race to the King, a 53.5 mile walk along (and up and down) the South Downs Way from Arundel to Winchester Cathedral, to raise money for The Sohana Research Fund (SRF). Billed as an ultramarathon, I will be part of a team walking the route non-stop through the night and we hope to finish in under 24 hours.[lt]/div[gt] [lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]I have raised money for the SRF before, and thank you for your previously generous support, but it has been a couple of years since the last event and so to recap…. The SRF was set up by friends of ours whose daughter, Sohana, suffers from Epidermolysis Bullosa (EB) which is a currently incurable genetic condition which causes the skin to blister and shear at the slightest friction. Sohana’s type of EB is progressive, life threatening and very painful. It causes children to gradually lose the skin over their bodies, leading to intense pain and deformity associated with scarring. We first found out about EB when our eldest daughter, Elisabeth, started school with Sohana’s twin sisters and have been supporting the SRF since.[lt]/div[gt] [lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]The SRF is working on behalf of DebRA, the UK registered charity for EB suffers, specifically to advance medical research into a treatment and ultimately a cure for EB. Recent medical advances have made this a real possibility. Since I last emailed the SRF has funded three clinical research trials and two novel clinical research studies, projects which tend to run from 2-5 years. Under the team led by Professor John McGrath, exciting progress is being made but further funds are needed to complete the research.[lt]/div[gt] [lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]Please give as generously as you can. All donations go direct to the Sohana Research Fund to advance the medical research that will hopefully make a real difference to Sohana and the lives of all families affected by EB.[lt]/div[gt] [lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]We realise awareness for EB needs to be raised so for further information about Sohana, RDEB and the research, please visit the website (www.sohanaresearchfund.org).[lt]/div[gt] [lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]Thank you for any support you can offer,[lt]/div[gt] [lt]div id="_mcePaste" style="position: absolute; left: -10000px; top: 0px; width: 1px; height: 1px; overflow: hidden;"[gt]Chris[lt]/div[gt] [p] This weekend I will be taking part in Race to the King, a 53.5 mile walk along (and up and down) the South Downs Way from Arundel to Winchester Cathedral, to raise money for The Sohana Research Fund (SRF). Billed as an ultramarathon, I will be part of a team walking the route non-stop through the night and we hope to finish in under 24 hours.[/p][p]I have raised money for the SRF before, and thank you for your previously generous support, but it has been a couple of years since the last event and so to recap…. The SRF was set up by friends of ours whose daughter, Sohana, suffers from Epidermolysis Bullosa (EB) which is a currently incurable genetic condition which causes the skin to blister and shear at the slightest friction. Sohana’s type of EB is progressive, life threatening and very painful. It causes children to gradually lose the skin over their bodies, leading to intense pain and deformity associated with scarring. We first found out about EB when our eldest daughter, Elisabeth, started school with Sohana’s twin sisters and have been supporting the SRF since.[/p][p]The SRF is working on behalf of DebRA, the UK registered charity for EB suffers, specifically to advance medical research into a treatment and ultimately a cure for EB. Recent medical advances have made this a real possibility. Since I last emailed the SRF has funded three clinical research trials and two novel clinical research studies, projects which tend to run from 2-5 years. Under the team led by Professor John McGrath, exciting progress is being made but further funds are needed to complete the research.[/p][p]Please give as generously as you can. All donations go direct to the Sohana Research Fund to advance the medical research that will hopefully make a real difference to Sohana and the lives of all families affected by EB.[/p][p]I realise awareness for EB needs to be raised so for further information about Sohana, RDEB and the research, please visit the website (www.sohanaresearchfund.org).[/p][p]Thank you for any support you can offer,[/p][p]Chris[/p]

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Event

Charity

Supporters


Jul 24, 2016

The attfields

Pitch - sounds like one of your overs....well done great cause

£50.00

plus £12.50 Gift Aid


Jul 24, 2016

Ed Sankey

Well done pitch

£50.00

plus £12.50 Gift Aid


Jul 24, 2016

Ross Mitchinson

Well done Pitch

£20.00

plus £5.00 Gift Aid


Jul 24, 2016

Frewen

£100.00

plus £25.00 Gift Aid


Jul 23, 2016

Ben and Alison Watson

I trust you made it and with the joy of Independent Research to bind you all together I am sure it was an inspired group of Redburn cult members who finished up in Winchester. Great cause as ever. BW

£100.00

plus £25.00 Gift Aid


Jul 23, 2016

The Thomas'

sorry for the late donation Chris. Hope it went well. The Thomas' x

£20.00


Jul 1, 2016

Cookie

Good luck Pitch

£50.00

plus £12.50 Gift Aid


Jun 29, 2016

Lil Pitch

Well done Big Pitch!

£50.00

plus £12.50 Gift Aid


Jun 29, 2016

Anna & Matt

Excellent work Chris, you're a good man, eat lots of sugar! ;)

£50.00

plus £12.50 Gift Aid


Jun 27, 2016

GWJ & N

Good on you Pitch....grind it out...leave anything outside off stump

£50.00

plus £12.50 Gift Aid

Chris Pitcher

Chris Pitcher

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