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Rania Mair

SNAC Charity Golf Day

Challenge complete

Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p][img][/img][img][/img]Everything was turned upside down for our family in June 2016 when Olivia got the diagnosis systemic juvenile idiopathic arthritis (SJIA). Nearly six months earlier Olivia was showing symptoms like rash and temperature spikes where we took her to see the gp several times over the duration of a few months. We were told it was “just viral” every time until she got even worse showing more symptoms and sent straight in to hospital. She went from being an active, happy and healthy girl to being lethargic and extremely ill. We were seen by several doctors and teams including specialists from Kings college in London. She underwent general anaesthetics, IV, blood tests, cannulas, biopsy, x-rays, scans, medication and in isolation at hospital for several weeks. We were sent home after a few weeks thinking it might be an autoimmune liver disease and was on daily medication however Olivia became worse and we were back staying in hospital again. [/p][p]After a lot of investigations she was diagnosed with SJIA at 3 years old and had to start treatment immediately. Since then there has been up and downs with complications, struggles and challenges. However thankfully there are daily medications and fortnightly infusions in hospital Olivia receives in order to keep the life threatening and incurable illness under control. She is able to play and do the same as her friends and is a very active, happy girl although she has had and are having a harder time than many other children. There are several precautions that needs to be taken being on heavy immunosuppressants and illnesses that can have severe complications and risks. However we have to take it a day at a time and try and make the journey for Olivia the best possible not letting the illness define her.[/p][p][img]https://scontent-arn2-1.xx.fbcdn.net/v/t1.15752-9/31239260_10160171282580431_8170219392718602240_n.jpg?_nc_cat=0&_nc_eui2=v1%3AAeEYGAogl9HykxKwOAqlHJz5ZO5eVK9vIvFGvECXACxmzCVxZJl1v-SQaUCkmk-CmxekHL8ZDWi-WxhyVqKu6GmUvk27NX5EudlgjcwiGTVykA&oh=ef348256e17992f06f937d826b57d5d7&oe=5B62F467[/img][/p][p][img]https://scontent-arn2-1.xx.fbcdn.net/v/t1.15752-9/31292661_10160171282550431_5716589586801491968_n.jpg?_nc_cat=0&_nc_eui2=v1%3AAeHduclNpivfBNP43H1Z_JNY2uGurO4hrY2YZ_98iylRh--Z9yCNpezxd7NvI8WPAjDONpufbRb52k9MZdm-tyiULs1GoZjoPIcwkIU-iF4zRw&oh=dd4b9708a68dfc29d37a32f91852ca86&oe=5B550587[/img][/p][p] Juvenile Idiopathic Arthritis (JIA) is an autoimmune disease where the immune system becomes over active or poorly controlled and sees the joints as foreign and attacks and damage them. It is thought that 1 in 1000 children under the age of 16 in the UK has JIA. There are several types of JIA, were SJIA is the rarest type, also classed as a rare disease, where less than 10% of children with JIA have SJIA. With SJIA the immune system does not only attack joints like JIA but can also attack all other organs in the body. There are no cure for JIA/SJIA and finding the right drugs for the condition can also be a challenge with a lot of trail and error. The treatment a lot of the children receives are through a combination of drugs and drugs that are often associated with chemotherapy.[/p][p] Scottish Network for Arthritis in Children (SNAC) provides a national support network for families living with the disease, as well as partaking in research studies and raising public awareness of the disease. The charity is fully funded by donations. A particular area they have focused on recently is raising money to film educational videos of the procedures to allow children to see and understand what is going to happen to them in hospital such as cannula insertion, blood tests and joint injections.[/p][p][img]https://scontent-arn2-1.xx.fbcdn.net/v/t1.15752-9/31252860_10160171282775431_7525367007122817024_n.jpg?_nc_cat=0&_nc_eui2=v1%3AAeH7Skjx9QN0_7GBu924oKuer_fA11xpZO3cNoS21EyLVA0upZ1jx9ZMGQBKSOOJap3XAh_cntHk_EtzhioSPwh-3NBkh7OedknFwTk6KZiJ1Q&oh=45e00bfe5ed571625b92211d8712bfec&oe=5B618FDA[/img][/p][p]————————————— [/p][p]As some of you know we are organising a charity golf day, Friday 8th of June 2018 at Oldmeldrum golf club in aid for SNAC (Scottish network for arthritis in children). Shotgun start 1pm. There will be soup and sandwiches from 12pm and a 2 course evening meal. Furthermore there will be prizes given and raffle for which we've received some generous prize donations. The price for the golf day is £200 per team of four. There are still a couple of spaces for more teams to enter! Would you or your company be interested in entering a team? [/p][p]In addition to the golf itself there are also flexible sponsorship opportunities available, so if that may be of interest we can provide further information. From donating a raffle prize, sponsoring a golf prize, sponsoring a hole, to becoming formal event partner (for less than you may think!).[/p][p]As there has been some requests asking to make donations to our chosen charity we decided to set up this donation page as well as the golf event. [/p][p]Any support at all would be greatly appreciated by ourselves and the charity. If you have any questions or would like further info please do not hesitate to ask.[/p][p]Gordon and Rania [/p][p][br][/p]

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Supporters

Jun 14, 2018

Wendy Ythan Fiddler

Love to all the family. X

£50.00 plus £12.50 Gift Aid

Jun 10, 2018

Scott Signe Anna and Catherine

Love from your friends

£70.00 plus £17.50 Gift Aid

Jun 9, 2018

Anonymous

£30.00

Jun 8, 2018

Emma Paterson

Well done Midge and Rania for bravely sharing your story and for organising all the fundraising. Love to you all and big bosies to both your beautiful little girls xxxx

£30.00 plus £7.50 Gift Aid

Jun 8, 2018

Keith finnie

Best wishes from keith, lesley & family.x

£50.00 plus £12.50 Gift Aid

Jun 8, 2018

Sheila T

All the best for a great day. With love for Olivia.

£20.00 plus £5.00 Gift Aid

Jun 6, 2018

Alex and Elaine

Best wishes for the event. With love from Grandma and Granda xx

£100.00 plus £25.00 Gift Aid

Jun 5, 2018

Mae Codona

With love from Great Granny xxxx

£30.00

Jun 4, 2018

Mhairi

Have an amazing day on a Friday

£50.00 plus £12.50 Gift Aid

Jun 2, 2018

Gordon and Sandra Robertson

All the best for a successful golf day. Lots of Love to Olivia. An amazing wee girl. Xx

£30.00 plus £7.50 Gift Aid