Our site needs cookies

We need cookies to help you sign in, create a fundraising page and donate. If you want to fundraise or donate on our site, you will need to turn on cookies How to turn on cookies.

It looks like you are trying to access a charity account.

Please click here for the charity sign in page. If you are not trying to access a charity account, please contact us.


Elaine Rust

Elaine's 100 Mile Cycle in Memory of Rowena

In memory of Rowena Robbins Link opens in a new window/tab

Challenge complete

Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p][span=font-size: large;][b]AUGUST UPDATE:[/b][/span][/p][p][span=font-size: large;][b][lt]span style="font-size: medium;"[gt]A huge thank you to everyone who donated so generously. We completed the ride without incident - not even a puncture! It was still an emotional day for me but we are proud of what we have achieved with your wonderful support. Every contribution you have made will make a difference. THANK YOU![lt]br /[gt][lt]br /[gt][/span][/b][lt]/span[gt][span=font-size: medium;]Robert and I are taking part in this year's Prudential Ride London-Surrey 100 mile cycle ride on 30 July for Brain Tumour Research.  We have a target of £500 each to raise and hope to achieve it. [/span][span=font-size: medium;]This is for very personal reasons as my second daughter, Rowena, was diagnosed with an inoperable brainstem glioma (brain tumour) when she was 2¾.  She died 17 months later. That was in 1998. [/span][/p][p][span=font-size: medium;]During the course of her illness, [lt]img style="float: right; margin: 2px;" src="https://c1.staticflickr.com/3/2808/33827857761_c07265ef8f_m.jpg" alt="https://c1.staticflickr.com/3/2808/33827857761_c07265ef8f_m.jpg" /[gt]Rowena suffered headaches, dizziness, inability to walk, speak or even use her hands and gradually lost control of all her functions. I first realised something was wrong when she walked into things and began to crawl instead of walk. When I took her to the doctor, she was initially diagnosed with an ear infection and I desperately wanted to believe it was the cause but something inside me knew there was more to it. Eventually, a different doctor had a suspicion that it was something more sinister. Unfortunately he was right. She had suffered a seizure and needed to have a shunt put in her skull to drain away the fluid that had built up owing to the tumour. Surgery was not an option. There was no cure but radiotherapy and steroids would alleviate the symptoms.[/span][/p][lt]br /[gt][span=font-size: medium;][lt]img style="float: left; margin: 2px;" title="Rowena and Penny the dalmatian" src="https://c1.staticflickr.com/3/2816/33957721225_b3387e9096_m.jpg" alt="https://c1.staticflickr.com/3/2816/33957721225_b3387e9096_m.jpg" width="152" height="220" /[gt][/span][span=font-size: medium;]This meant that a three year-old had to be put through a really scary experience all alone - she had to have a plastic mask made for her whole face, which trapped her to the table during radiotherapy, to stop her moving. She was allowed to take Penny the dalmatian in with her and I could talk to her through a speaker system. It was heart-wrenching. It did help and she lived longer than the doctors thought she would. [lt]br /[gt][/span][p][span=font-size: medium;]This whole period was devastating.[lt]img style="float: right; margin: 2px;" src="https://c1.staticflickr.com/3/2823/33957714105_a7dab69132_m.jpg" alt="https://c1.staticflickr.com/3/2823/33957714105_a7dab69132_m.jpg" /[gt] As a parent you think you should be able to find a solution to all your children's problems. Words still can't describe the feeling when you are told there is no cure.[/span][/p][p][span=font-size: medium;]Rowena died 17 months after the diagnosis. [/span][span=font-size: medium;]Nearly 20 years later there is [b]still NO CURE[/b] for brainstem gliomas. Brain tumour research is painfully underfunded. [/span][/p][p][span=font-size: medium;][lt]img style="float: left; margin: 2px;" src="https://c1.staticflickr.com/3/2838/33144531053_1331e8a486_m.jpg" alt="https://c1.staticflickr.com/3/2838/33144531053_1331e8a486_m.jpg" /[gt]Rowena was just like any other little girl - she liked dressing up, being mischievious, laughing, playing with her big sister. She didn't get the chance to grow up.  [/span][/p][p][lt]img style="float: right; margin: 2px;" src="https://c1.staticflickr.com/3/2904/33957701555_1ffc4a894a_m.jpg" alt="https://c1.staticflickr.com/3/2904/33957701555_1ffc4a894a_m.jpg" /[gt][lt]br /[gt][span=font-size: medium;]This final photo was taken just two months before she died. [/span][span=font-size: medium;]You wouldn't know she was ill apart from her inability to walk far.  This is what a brain tumour looks like.[/span][/p][p][lt]br /[gt][span=font-size: medium;]Please help find a cure for this. It has torn this family apart and not only left a crevace that cannot be filled but a legacy of despair in those who remain. Every penny you donate will make a real difference.[lt]br /[gt][lt]br /[gt][lt]br /[gt]Thank you[/span][/p]

Share Elaine's story

Other ways to support Elaine's fundraising effort

Turn your unwanted stuff into donations

together withziffit.com logo

Earn free donations when you shop

together withkindred logo


Jul 30, 2017



Jul 29, 2017

Julie Byers

Good Luck Elaine and Rob. Safe pedalling!


Jul 29, 2017

Barbara Ian Rhys xx

Good luck sis I am sure you can win it!!!

£30.00 plus £7.50 Gift Aid

Jul 28, 2017

Vicky Smith

Good luck, enjoy the ride.

£10.00 plus £2.50 Gift Aid

Jul 28, 2017


Elaine and Rob, I do hope all goes well on Sunday, and that the weather is dry and that there are no diversions this year on the course. I will be thinking of you both on our morning CTC ride. Good luck and safe cycling.

£20.00 plus £5.00 Gift Aid

Jul 28, 2017

Lydia and Clyde

Happy to donate for this valuable cause. Have a good ride!

£20.00 plus £5.00 Gift Aid

Jun 30, 2017

John Spiers

I hope that you both enjoy the ride.

£15.00 plus £3.75 Gift Aid

Jun 29, 2017


Elaine and Robert, a great cause, good luck n RideLondon, see you on the start line

£50.00 plus £12.50 Gift Aid

Jun 27, 2017

Liz Slinn

Well done my friend.

£30.00 plus £7.50 Gift Aid

Jun 27, 2017


good luck Ealine

£50.00 plus £12.50 Gift Aid