Our site needs cookies

We need cookies to help you sign in, create a fundraising page and donate. If you want to fundraise or donate on our site, you will need to turn on cookies How to turn on cookies.

It looks like you are trying to access a charity account.

Please click here for the charity sign in page. If you are not trying to access a charity account, please contact us.


Samuel Jones

London Marathon 2019

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]Some 30+ years ago, the Nystagmus Network was founded by my mother and a group of others, to support people with the condition Nystagmus and their families, as well as to further research into and understanding of the condition. Nystagmus is a complex eye condition that is characterised by involuntary movements of the eye and is a associated with a wide variety of other eye conditions. Nystagmus affects around 1 in 1000 in the UK including yours truly. [/p][p]The Nystagmus Network has gone from strength to strength over the past 33 years however can only continue to do the great work it does (see its website for more details) if it continues to raise money. Since I have developed a healthy appetite for running, I have signed up for the 2019 London Marathon in the hope that I can help push the NN onwards towards the funding of further research, further events and further understanding of a condition that affects so many.[/p][p]Please sponsor me and help make the London Marathon 2019 a hugely successful one for the Nystagmus Network.[/p][p]Sam[/p]

Share Samuel's story


Apr 27, 2019

Caroline A

Good luck, Sam. You can do it.

£10.00 plus £2.50 Gift Aid

Apr 27, 2019

Mark and Susan

Have a brilliant run tomorrow Sam! It is fantastic thing you are doing. We will be willing you on all the way.

£40.00 plus £10.00 Gift Aid

Mar 22, 2019

Jacqueline Jones

Good luck Sam with your training for the London Marathon and on the day. Thank you so much for raising funds for Nystagmus Network, a charity that has been a great support for my daughter who was diagnosed with congenital nystagmus in 1987.

£50.00 plus £12.50 Gift Aid

Mar 16, 2019

Francoise Jourdan

Good luck !


Mar 9, 2019


Good luck sam!!! :):)


Mar 7, 2019


Well done Sam. Thank you to you and your mum, NN is a fantastic support to so many.

Mar 7, 2019

The Cleverly Family

Good Luck Sam. Thank you for running for The Nystagmus Network, such an amazing cause.

£50.00 plus £12.50 Gift Aid

Mar 7, 2019

Marc Bromback

Great cause, thank you Sam and good luck.

£10.00 plus £2.50 Gift Aid

Mar 7, 2019

Sarah Maddison

Good luck for the day!

£5.00 plus £1.25 Gift Aid

Feb 28, 2019

Andy V

Best of luck Sam

£15.00 plus £3.75 Gift Aid