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Profile

Sarah Barker

Fundraiser Night 18 May 2019

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]For this fundraiser gig, we will have an incredible band, Vicious Kitten (http://www.viciouskitten.band/music/) a four piece, female fronted, high energy pop/rock covers band, a Hog Roast and BBQ, Bar, Grand Raffle and Auction in aid of a little-known but fantastic epilepsy charity, The Daisy Garland (registered charity number 1106530, http://www.thedaisygarland.org/). All profits will go to The Daisy Garland. [/p][p]Tickets are £12.50 in advance and £15 on the door and will include a Hog Roast and pud/cakes. If you buy tickets on Virgin Money Giving (and I don't know you!), please be sure to send me your details so I know who you are! I can post your tickets to you or you could collect them on the door. Email me on info@weekefarmdevon.co.uk[/p][p]My 5 year old daughter, Isabelle, was diagnosed at 10 months old with a rare and catastrophic epilepsy called West Syndrome which damaged her brain and caused Global Developmental Delay. [/p][p]The Daisy Garland has been a lifeline to our whole family in terms of ongoing emotional support and in providing a night time breathing monitor so that we can sleep at night knowing that she is at a much greatly reduced risk of SUDEP (Sudden Unexplained Death in Epilepsy Patients).[/p][p]The Daisy Garland also provides fully funded dieticians to the NHS so that Isabelle can use the incredible ketogenic diet as a form of treatment alongside three strong anticonvulsant epilepsy drugs. The ketogenic diet is often used as a last resort when medications or surgery do not control seizures as it is extremely strict and complicated. It cannot be undertaken safely without a referral from a paediatric consultant and without the guidance of a trained ketogenic dietician.[/p][p]Isabelle started the ketogenic diet in December 2017 after eight different medications failed to bring seizure control. She was taking three of these strong medications at the maximum possible dosage and was still having 80-100 seizures each day. Incredibly, since starting the diet, Isabelle’s seizures have reduced to 5-10 a day, her cognition has hugely increased and we have even been able to wean her off some of these strong drugs a little. It’s incredible what she has achieved, against all odds, and we are incredibly proud of her. This would never have been possible without The Daisy Garland providing the dietician to the NHS.[/p][p]I am holding a grand raffle and auction at the gig. If you know anyone or any company who could donate prizes for the grand raffle or auction please let me know or email me on info@weekefarmdevon.co.uk . [/p][p]I will list all donated prizes on my website (http://www.weekefarmdevon.co.uk/the-daisy-garland-fundraiser/) and on my personal and business Facebook, Instagram, Linked-In and Twitter accounts as advertising for you. If you would like to let me have some business cards to hand out at the event, please do.[/p][p] Looking forward to it![/p][p] Sarah [/p]

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Event

Personal Challenge Date

18 May 2019

Supporters

17-Jan-2019

Claire Marshall Tucker

£25.00 plus £6.25 Gift Aid

16-Jan-2019

Debbie Morris

Money for the tickets plus a donation x

£30.00 plus £7.50 Gift Aid

08-Jan-2019

Sarah

Test!!

£1.00