Sienna's World Fundraising Page

Catherine Parsi
Phyllida Jones

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

Team story

[p]This year I am running the 2014 Virgin money London Marathon[/p] [p][b] but with a big difference![/b][/p] [p]In 2012 I gave birth to a beautiful set of twins, Sienna and Joshua. They were born early at 28 weeks 6 days and were in the Special Care baby unit (SCBU) at Watford Hospital for 50 days. Our emotional roller coaster had begun.[/p] [p]On New Year’s Eve we bought our bundle of joys home allowing us to start 2013 all together as a family. As everyone knows it was a constant round of feeds, nappy changing and lack of sleep but we were delighted to have them home.[/p] [p]One week later Sienna and Joshua had a follow up appointment with an Ophthalmologist, Joshua was given the all clear but Sienna had developed Retinopathy of Prematurity (ROP) a condition which is found in premature infants. Despite laser treatment at GOSH and Scleral buckle surgery at the John Radcliffe Hospital in Oxford the disease remains and Sienna is now registered blind.[/p] [p]As a mother I feel I need to understand “Sienna’s World” and the challenges she and many others face every day. This year with the help of my friend Phyllida Jones we are running the London marathon. I am going to be blindfolded and Phyllida is my guide.[/p] [p]We have been training round our local area.  This has been a big learning curve for us both. We have had to learn to trust each other, we have devised our own” running lingo” 1,2,3,  step/kerb to keep me safe as there are many trip hazards. It has heightened my other senses I could smell the lake water, hear instruction being yelled at a boot camp, I was actually listening to the birds singing. I have had to adjust my running technique as the slightest decline of a hill makes me feel as if I am falling. Our skills were definitely put to the test in out first race amongst other runners - the Watford Half Marathon on Sunday 2[sup]nd[/sup] February. My blog of the race is further down.[/p][p]When I'm not running round the local area blindfolded, I can often be seen out running with my friend Jane Thomas and our dogs.  Jane supports me and encourages my training in order to increase my speed and keep my stamina up.  Jane is also fundraising in honour of Sienna by running the Great North Run for Guide Dogs for the blind as we imagine Sienna will have her very own guide dog in the future.  [/p][p]Phyllida and I are raising money for the charity “Fight for Sight” – which is the main UK charity dedicated to funding eye research to prevent sight loss and to treat eye disease in babies, children and adults.[/p] [p][span=color: #3366ff;]My wish is that one day a treatment will be available to give Sienna sight ..... Mummy xx[/span][/p] [p][/p] [p]Virgin Money Giving will claim gift aid on a charity's behalf where the donor is eligible for this - please mark the gift aid box if you are eligible!!  We really appreciate all your support and thank you for any donations.[/p][p][/p][p][/p][p][i][b]Watford Half-Marathon Blog:[/b][/i][/p][p]I am so used to running races by now, that this one was out of my comfort zone and I was out of control.  Heart pounding, feeling uneased, we started to line up, but this time AT THE BACK!  I normally have a last minute stretch, check my watch and pinpoint another runner to keep in my sights.  Instead I check I have hold of the lead and pull the eye mask down.  I feel alone even though I am surrounded by thousands of runners.  Without sight, my hearing has heightened.  I would normally blackout everyone else and look at the start marshall but I can't see them.  My hearing is picking up peoples conversations "look at her" "wow what a challenge", people are talking about me but I can't see them.  To my right hand side in the distance I hear "Catherine", I turn to Phyllida my guide and say "my Dad's over there".  He shouts out "pose for a picture" and then bang the gun has gone, we slowly shuffle forward to the start line, 13.1 miles to complete.  [lt]br /[gt][lt]br /[gt]I couldn't tell you where I ran, or the route, it was very undulating and Phyllida did a fantastic job of talking the whole way through... "what", "where", "when"... to allow me to imagine what was ahead.  I am lucky because I have those images of a hill, park, puddle in my mind so it made it easier to anticipate the hurdle ahead.  It occured to me that Sienna doesn't.[/p][p]I managed to relax and enjoy the run and get into my stride, even if it was a little too quick for Phyllida "Slow down Catherine".  The home stretch we were cheered and clapped by supporters, I remember the commentator announcing my name and Sienna's World.  It gave me a feeling of joy that I knew I had completed the race.  We finished in 2 hours and 28 minutes, that's about 45 minutes longer that I would normally take.  After collecting my medal, I removed my mask and looked around.  I saw my husband running over with the twins in the pushchair, he gave me a hug and a kiss and said "I had tears in my eyes when I saw you finishing, well done", that meant so much to me.  My family were there to support me and I felt really proud of what myself and Phyllida has achieved.  I hope that when Sienna is older, I can explain what Mummy has done and explain how I am trying to experience her world and I want her to know she can achieve anything she wants in life, it just might take a little bit longer![/p]

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Supporters


Jun 6, 2014

Anonymous

Well done Ladies

£10.00

plus £2.50 Gift Aid


May 19, 2014

Mohaned

Well done you've achieved a lot I hope you achieve what you want and bless you and your lovely family

£50.00


May 13, 2014

Nick

Well done, Phyllida.

£50.00

plus £12.50 Gift Aid


Apr 28, 2014

Suzanne W. and Family

Well done Phyllida in support of this excellent cause.

£10.00


Apr 23, 2014

Anonymous

Well done Catherine & team,from your well wishing neighbours.

£20.00

plus £5.00 Gift Aid


Apr 23, 2014

Anonymous

Catherine, I am Evie Summers Grandmother (remember Evie). She never stopped talking about you when she attended Toddlers-In. Well done for what you did/are doing and our very best wishes to little Sienna, you and your family

£20.00


Apr 21, 2014

Anonymous

Congratulations to you all.

£20.00

plus £5.00 Gift Aid


Apr 21, 2014

Anonymous

Very well done to you both. Hope your legs have recovered !

£20.00

plus £5.00 Gift Aid


Apr 18, 2014

Anonymous

Well done Catherine & Phyllida on this amazing achievement.

£15.00

plus £3.75 Gift Aid


Apr 16, 2014

Anonymous

£10.00

Catherine Parsi

Catherine Parsi

Phyllida Jones

Phyllida Jones

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