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Smile with Shiv

Smile with Shiv fundraising for Duchenne UK

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]Thanks for taking the time to visit Smile with Shiv's Fundraising page.[/p][p]In April 2014, at the age of 3, our fun loving, caring and ever so cheeky son Shiv with the most beautiful smile was diagnosed with a horrible condition called Duchenne Muscular Dystrophy (DMD).[/p][p]Shiv looks like any other boy his age on the surface; but his condition means that he is getting weaker by the day. In his early teens he will lose the ability walk, by his late teens he will start to suffer respiratory complications and by early twenties he could die from heart failure. This is typical for all Duchenne boys. Currently there is NO CURE.[/p][p]Coming to terms with Shiv’s condition has been extremely difficult for us and continues to test us on a daily basis; however, very quickly after entering the world of Duchenne and speaking to Duchenne organisations, scientists and other families impacted by this terrible condition, we now know that there is hope as researchers are working really hard to find a treatment and potential cure.[/p][p]We find ourselves in a race against time; we cannot sit back and wait for a treatment or cure to materialise, but need to act now to do what we can to speed up the process. For this reason we have set up the 'Smile with Shiv', and our goals are simple:[/p][p]Raise awareness of Duchenne Muscular Dystrophy[/p][p]Raise as much money as possible so it can be given to those working to save Shiv’s life and thousands of other children with this horrific condition[/p][p]Work with the Duchenne community to ensure we have access to potential treatments as early as possible[/p][p]We ask you to 'Smile with Shiv' and help us reach our goals. Please also visit our web site [url=http://www.smilewithshiv.org/]www.smilewithshiv.org[/url], follow us on Twitter: @svt_mands and Facebook: @smilewithshiv[/p][p]We are working with the Duchenne UK, a leading UK charity, to raise as much money for the Duchenne Research to help find an effective treatment and a cure for this horrible progressive condition - We are helping the World's Strongest Boys[/p][p]We will be organising many fund raising events along the way. Please look out for details here, our website, our Facebook page and our twitter. In the meantime, any donations would be gratefully appreciated.[/p][p]Thank you so much[/p][p]Manoj, Sejal and of course Shiv xx[/p][p]For more information about the condition and Smile with Shiv / Duchenne UK, please visit:[/p][p][url=http://www.smilewithshiv.org]www.smilewithshiv.org[/url][/p][p][url=http://www.duchenneuk.org]www.duchenneuk.org[/url][/p][p]Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.[/p]

Share Smile with's story

Event

Personal Challenge Date

31 Jan 2023

Supporters

11-Oct-2018

Pritti and colleagues xx

Hopefully this can help.

£130.00 plus £32.50 Gift Aid

25-Sep-2018

Smile with Shiv

Donations from Smile with Shiv collection boxes

£115.00

11-Jun-2018

Bottled Occasions

Was a privilege doing the cocktails and mocktails for the Smile with Shiv event at New Vision Opticians. A great and worthwhile cause.

£30.00

29-May-2018

Anonymous

In loving memory of Sushila Aunty. You will be greatly missed . Love .The Amin 's

£50.00

24-Jun-2017

Rupesh Bhayani

Best wishes to Smile with Shiv and Duchenne UK.

23-Jun-2017

Dharmesh and Hema Gadhavi

Rupa - Apologies we could not be there on the night. Great cause.

£50.00 plus £12.50 Gift Aid

19-Jun-2017

Rajesh Chandegra

Keep fighting

£250.00 plus £62.50 Gift Aid

19-Jun-2017

Alka and Ashish

We had a great time at the Smile with Shiv dinner gala. We hope medical research can help move the treatment of Duchenne forward.

£201.00 plus £50.25 Gift Aid

18-Jun-2017

Michelle Sherman

Dear Shiv, Your story touched my heart. Keep smiling and hold on to your hopes and dreams. Michelle x

£20.00 plus £5.00 Gift Aid

17-Jun-2017

Mitul and Nimmi