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Profile

Steve Winder

London - Paris cycle in 24h. For DMD research

Challenge complete

Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p] I haven’t cycled 100 miles in a day since I was a teenager, I haven’t even been on a road bike in over 30 years. So why would I now decide to undertake a 180 mile cycle ride from London to Paris, and in only 24 hours?[/p][p]Answer: to raise funds for research into Duchenne muscular dystrophy.[/p][p]Duchenne muscular dystrophy (DMD) is a life limiting and debilitating muscle wasting disease affecting around 1 in 5000 boys worldwide. There is no permanent cure, there are no universal or significantly life changing treatments. Boys lose the ability to walk in early teens, and progressively over the next 20 years lose the ability to use all muscles, eventually dying of respiratory or cardiac failure.[/p][p]Although I’ve dedicated the last 25 years of my research career to understanding DMD and trying to identify new ways to treat it, I’ve never actually done any direct fund raising for research into the disease. So why now? Because now, after those 25 years, I truly believe the DMD research community is on the brink of developing treatments that will really have long lasting impact and improvements for the lives of boys with DMD. Watch the video [url=https://youtu.be/e2uKGoWO0K4]https://youtu.be/e2uKGoWO0K4[/url][/p][p]As a researcher myself, I know how much time, effort and expense goes into developing these treatments. And even then, these will be first generation therapies, more money will also be needed for further research to develop second and third generation therapies that will be safer and even more effective. Here's a video of me describing our research[/p][p] [url=https://www.facebook.com/laforcedmd/videos/851252318382384/]https://www.facebook.com/laforcedmd/videos/851252318382384/[/url] [/p][p]So please give generously to this very worthy cause and help to make a real difference for boys with DMD.[/p]

Share Steve's story

Event

Duchenne Dash 2018

Duchenne Dash 2018

08 Jun 2018

Supporters

Aug 13, 2018

Armelle Bonet Kerrache

A bit late but felicitations a toi

£30.00

Jul 11, 2018

Steve

4,000 raised, over 1,000,000 in total - epic

£8.00 plus £2.00 Gift Aid

Jul 7, 2018

Ed Grosvenor

Well Done Steve! Brilliant effort!!

£20.00

Jun 28, 2018

Gemma Marston

Congratulations - fantastic effort

£20.00 plus £5.00 Gift Aid

Jun 27, 2018

Liz Wood

Good effort!

£5.00 plus £1.25 Gift Aid

Jun 25, 2018

Andrew Peden

£50.00 plus £12.50 Gift Aid

Jun 22, 2018

Laura Jacobs

Well done Steve!

£10.00 plus £2.50 Gift Aid

Jun 19, 2018

Viv Stewart

Well done Steve!

£30.00 plus £7.50 Gift Aid

Jun 19, 2018

David and Gill

Well done Steve!

£30.00

Jun 19, 2018

Arden Armitage family

£15.00 plus £3.75 Gift Aid