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Summit Club - Ben Nevis

5 team members

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Team story

[p]In September 2019, The Palo Alto Networks Western European Channel Team have taken on the challenge of walking up Ben Nevis. We are doing this in aid of The UK Infantile Spasms Trust (UKIST), a charity which provides a network of support to families with children affected by the rare seizure disorder infantile spasms, also known as West syndrome.[/p][p]We have optimistically called ourselves 'The Summit Club' and would really appreciate you helping us to hit our target to raise money for this amazing charity.[/p][p]Our team is made up of: Sacha Rehmat (Captain), Stuart Taylor, Adrian Tisi, Bob White, Chris Sidwell-Smith, Magnus Muhlert, Mark Carpenter, Matt Smith, Miranda Allen, Phil Taylor[/p][p]Infantile spasms (IS) is difficult to diagnose and is often missed due to lack of practitioner awareness or the subtlety of the symptoms. Swift diagnosis is however critical as the longer the condition goes untreated the more harm it does typically resulting in developmental regression, permanent brain damage or worse.[/p][p]Treatment can also be complicated with those options available offering varying degrees of efficacy along with some unpleasant side effects thrown in for good measure.[/p][p]One of our team has personal experience of this with his 10 month old daughter having been diagnosed with this condition. Fortunately, through swift intervention and his daughter now aged 4 is doing well and long terms prospects look favourable although the possibility of future complications does still exists. Not everyone is so fortunate.[/p][p]UKIST has been set up to raise awareness of this rare condition and ultimately to provide support for those families faced with a diagnosis.[/p][p]The attached video link provides more detail on this condition.[/p][p][url=https://www.youtube.com/watch?v=IOaMntByLOs]https://www.youtube.com/watch?v=IOaMntByLOs[/url][/p]

Share their story

Event

Personal Challenge Date

18 Sep 2019

Supporters

Oct 16, 2019

Gavin Bonner

Well done team and well done on raising a great sum of money for charity, thanks Gavin

£10.00 plus £2.50 Gift Aid

Sep 29, 2019

Stacey McDonald

£50.00 plus £12.50 Gift Aid

Sep 20, 2019

The Thurlows

Well done to you all, especially Mr Sidwell-Smith... The kids have donated some of their pocket money too! Very proud of all you! From the Thurlow Clan!

£22.00 plus £5.50 Gift Aid

Sep 19, 2019

Nirmal Dave

Great effort - Well done all!!

£30.00 plus £7.50 Gift Aid

Sep 19, 2019

Chris

Well done guys!! Great Effort!!

Sep 19, 2019

Brett

Thanks for having me along on the event - you all rocked it!

£150.00 plus £37.50 Gift Aid

Sep 19, 2019

Matt Rhodes

Great work for a great cause!

£50.00 plus £12.50 Gift Aid

Sep 19, 2019

ST

Well done, great day!

£100.00 plus £25.00 Gift Aid

Sep 19, 2019

Martin

Top effort. Great cause.

£15.00 plus £3.75 Gift Aid

Sep 19, 2019

Jez Arnold

Congrats Ade and team ! Looking at the pic, I see Scotland bought some of that refreshing rain for your summit :)

£25.00 plus £6.25 Gift Aid

Sacha Rehmat

Sacha Rehmat

Adrian Tisi

Adrian Tisi

Stuart Taylor

Stuart Taylor

Robert White

Robert White

Chris Sidwell-Smith

Chris Sidwell-Smith