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Profile

Susan Lander

One year alcohol free

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]Thank you taking the time to come to my Virgin Giving page. I have pledged to give up all alcohol for one year. Anyone who knows me will understand what a huge challenge this will be to me 😂![/p][p]I will be doing this to aid the work of Metabolic Support UK a fantastic charity close to my heart. The charity helps people and their families with all inherited Metabolic Disorders, offering practical advice and emotional support. They also connect them with other patients to help with the often isolating feelings associated with being diagnosed with a rare disorder.[/p][p]My husband Carl, of nearly 25 years, has had Pyruvate Kinase Deficiency (PKD) since he was born. This is a rare genetic condition that causes a haemolytic anaemia, in which a person’s red blood cells are broken down prematurely. This results in constant tiredness, shortness of breath, muscle aches and a reduced ability to concentrate, and for Carl the need to have blood transfusions every two weeks. In spite of this, he has worked hard all his life and refuses to be defined by his condition. He, together with Metabolic Support UK, is passionate about ensuring that families with newly diagnosed children are properly supported in finding the best care quickly, giving them the best life chances as soon as possible.[/p][p]Metabolic Support UK are aiming to hold a patient workshop for those living with PKD at their annual conference. This will bring PKD patients and families together to better understand their needs and to put them in touch with each other for support. They will also improve resources and toolkits to assist with medical appointments and to increase awareness of the charity so new patients understand where to go for help. Any money raised through this challenge (no matter how small the amount you are able to spare, it all adds up) will help Metabolic Support Uk to provide these vital services. [/p][p]Wish me luck and please help towards the brilliant work that this charity continues to do each day![/p][p][br][/p]
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Event

Personal Challenge Date

17 Jun 2020

Supporters

Jun 19, 2020

Sharon

A £ for every week- if I was richer it would be a pound for every day! I personally would throw myself off a cliff for charity than give up alcohol-you never cease to amaze me👍😆

£52.00 plus £13.00 Gift Aid

Jun 19, 2020

Eve

Well done Sue. Keep going

£20.00 plus £5.00 Gift Aid

Jun 18, 2020

Mandie

A little something for every week of this madness!!! Seriously, what a wonderful thing to do. Will give you all the support and encouragement you need, not that I think you will need it. Lots of love, Mandie, Dave and girls. Xx

Jun 18, 2020

Anonymous

£10.00 plus £2.50 Gift Aid

Jun 17, 2020

Jane and Benji x

Wow what a woman!!!! This is such a challenge and for a great cause well done you! I will sponsor you again at the 6 month mark so keep going!!!!!! Much love xx

£15.00 plus £3.75 Gift Aid

Jun 17, 2020

Claire

Well done Sue great effort xx

£15.00 plus £3.75 Gift Aid

Jun 17, 2020

Dawn Jordan

Good luck, rather you than me. Have known Carl since he was very young. Hope it all goes well.

£5.00 plus £1.25 Gift Aid

Jun 17, 2020

Julie

Hope it makes a difference for the charity and yourself during the challenge! Love to all xx

Jun 16, 2020

Amanda

Jun 16, 2020

Lucy Whiting

Good luck x

£10.00 plus £2.50 Gift Aid