Susanne Stevens

Susanne Stevens

36 hour live bbq and running 100K in March

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]As many of you know our daughter, Charlotte, was diagnosed with narcolepsy and cataplexy in 2020. This is a chronic neurological condition which results in altered sleep patterns causing her to feel extremely tired every day. Narcolepsy UK is a charity that has helped us come to terms with this condition as well as offering valuable advice in terms of medication and educational support and ultimately help Charlotte lead as normal a life as possible. [/p][p]As a gesture of our gratitude, Rob and I would like to raise money for this charity to enable them to continue to help people like Charlotte.[/p][p]Rob is planning to hold a 36 hour live barbecue starting on 19th March. He has chosen to do this over 36 hours because it is said that a person with narcolepsy feels as though they have been awake for 36 hours every single day.[/p][p]I have decided to set myself a slightly different challenge and will be running 100K throughout March.[/p][p]We would be so appreciative of any donations you would be happy to pay.[/p]
36 hour live bbq and running 100K in March image 1
36 hour live bbq and running 100K in March image 2
36 hour live bbq and running 100K in March image 3
36 hour live bbq and running 100K in March image 4
36 hour live bbq and running 100K in March image 5
36 hour live bbq and running 100K in March image 6

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Event

Personal Challenge Date

06 Apr 2021

Supporters


Apr 4, 2021

BBQ Bill

Great work all!!

£100.00

plus £25.00 Gift Aid


Apr 4, 2021

Mick Forbes

box top up

£420.00

plus £105.00 Gift Aid


Apr 2, 2021

Elliot Hague

£20.00

plus £5.00 Gift Aid


Mar 31, 2021

@Bigchiefsbbq - Robin

Well done, I’m sure the extra cash will help but awareness is key part of allowing sufferers to be accepted by everyone

£15.00

plus £3.75 Gift Aid


Mar 31, 2021

BeardandBBQ_

Fantastic cause and brilliant achievment from all

£10.00

plus £2.50 Gift Aid


Mar 31, 2021

ShareMyYear

A fantastic cause, I thoroughly enjoyed watching you and the guests over the 36 hours. Well done Rob and all involved in the fundraising.

£100.00


Mar 29, 2021

Chris

What a great effort, so many conditions that you often don't know are out there until they hit someone you know...good luck...and a shame I missed a burger....

£50.00

plus £12.50 Gift Aid


Mar 29, 2021

Poppy

£15.00

plus £3.75 Gift Aid


Mar 27, 2021

Jeanette Harvey

£30.00


Mar 27, 2021

Mike Skinnyboybbq

£15.00

plus £3.75 Gift Aid

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