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National Society for Phenylketonuria

Stepforward4PKU

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]On Sunday 30th June across the UK in 5 different sites, NSPKU volunteers will leading walks to raise awareness and funds for NSPKU. This celebrates International PKU Day (actually on 28.6.19). Please support those living with phenylketonuria (PKU) by making a donation - every little helps.[/p][p]PKU is a rare inherited condition in which there is a build up of phenylalanine in the body. Phenylalanine is a natural substance; it is a building block of protein. PKU is looked for in all newborns in the UK by measuring phenylalanine levels in the heelprick blood test. All babies should have this test as it allows treatment to start early in life.[/p][p]The NSPKU exists to help and support people with PKU, their families and carers. The NSPKU actively promotes the care and treatment of people with PKU and works closely with medical professionals in the UK. It organises events such as conferences and study days throughout the UK, publishes a wide range of publications (including food lists) for parents, people with PKU and medical professionals. The NSPKU also sponsors medical research into PKU, we advocate for the PKU community, for instance by campaigning in parliament.[/p][p]For information on our walks taking place on Sunday 30th June - please go to our website - you will see details on the left handside, under "News": [/p][p]http://www.nspku.org/[/p][p][br][/p]

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Supporters

Jul 1, 2019

Heidi

£10.00

Jul 1, 2019

Anonymous

£10.00 plus £2.50 Gift Aid

Jun 30, 2019

Emma Luxton-Taylor

Thankyou to the NSPKU for all your hard work.

£30.00

Jun 30, 2019

The Patterson Family

See you in Bath!

£20.00

Jun 29, 2019

Alison Hudson

£15.00 plus £3.75 Gift Aid