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Team LGDA

8 team members

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Team story

[p]Welcome to our Team LGDA fundraising page. We are taking part in the 2020 Virtual Million Dollar Bike Ride for Research[/p][p]An annual fundraising event that usually takes place in Philadelphia has had to make some changes due to the recent COVID-19 outbreak, and social distancing recommendations. The Million Dollar Bike Ride (MDBR) has gone VIRTUAL! [/p][p]As a virtual event, it gives everyone around the globe (patients, families and friends, and friends of friends) the opportunity to support the LGDA's biggest research fundraising event. Our global fundraising target is to reach [b]$30,000.[/b] [/p][p]If you would like to participate and join the Team LGDA fundraising page, email uk@lgdalliance-europe.org. Full event information can be found by visiting our website [url=http://www.alfiemilne.org.uk]www.alfiemilne.org.uk[/url] [/p][p]Choose your challenge and distance - walk, run or cycle[/p][p]Join the Team LGDA fundraising page or set up your own.[/p][p]Share your challenge with friends and family and start fundraising.[/p][p]Since 2015 and with the help of our supporters, this annual event has raised over $650,000 and funded 10 research projects directly related to GLA, KLA, GSD and CCLA. All donations will be matched by UPenn Orphan Disease Center, up to $30,000, to fund a new research grant for our diseases. 100% of the funds raised go towards these pilot grants, with no overhead taken out.[/p][p][i]LGDA-UK and it's international partners, supports patients and families affected by lymphangiomatosis (GLA), kaposiform lymphangiomatosis (KLA), Gorham's Disease (GSD), and central conducting lymphatic anomaly (CCLA). There is no cure, limited understanding of the diseases and only a few therapy drugs available to patients. Research is vital to give those affected by these ultra-rare diseases hope for a better future. [/i][/p][p]We appreciate that these are hard times for everyone. Every donation, however big or small, makes a difference. Thank you.[/p][p]Team LGDA[/p][p] [/p][p] [/p][p] [/p][p] [/p]

Share their story

Supporters

May 14, 2020

Anonymous

£50.00

May 5, 2020

Sheila. Veale

Best.wishes, Sheila V

£20.00 plus £5.00 Gift Aid

May 3, 2020

Karen and Faya

Good luck xxx

£10.00

May 1, 2020

Kayleigh Harper

£20.00 plus £5.00 Gift Aid

Apr 30, 2020

Mark Milne

Donate to participate - Million Dollar Bike Ride

£25.63 plus £6.41 Gift Aid

Apr 30, 2020

Tracy Milne

Donate to participate - Million Dollar Bike Ride for Research

£25.63

Tracy Milne

Tracy Milne

Ioana Lazaroae

Ioana Lazaroae

Team Sete Team Sete

Team Sete Team Sete

Alex Thompson

Alex Thompson

Sam Newson

Sam Newson

Lee Newson

Lee Newson

Molly Newson

Molly Newson

Mark Milne

Mark Milne