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Team OV Walk 18 Miles for The Daisy Garland

9 team members

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Team story

[p]Nine of the One Voice Media & PR team are doing an 18 mile walk, The Templer Way, on 23rd June, fundraising for [url=http://www.thedaisygarland.org.uk/]The Daisy Garland[/url]. This is an incredible charity based in Totnes and operating across the UK which supports families living with drug-resistant epilepsy. This is a charity that is particularly close to One Voice’s heart. One of our team, Sharon, has a four year old daughter with a rare form of drug-resistant epilepsy. She was diagnosed with epilepsy at 18 months old. Here’s Sharon’s story. She also writes a blog – [url=https://lifewithalivewire.wordpress.com/]here[/url].: [/p][p]Taz (nickname) had her first visible seizure at 18 months old. It was terrifying. We hoped it was a one off but she then had another two weeks later. Shortly after this she started ‘blacking out’ and dropping to the floor up to 20 times a day. We then spent a surreal six weeks being tested for various (very serious) illnesses. Our anxiety eased as the medication seemed to work and lots of tests came back normal. We felt ‘out of the woods’ only to be confronted with more seizures (this time a new type) a few months later. Since then it’s been a juggle of meds and Taz’s epilepsy is now classed as ‘drug resistant’. She is now 4 and continues to have abnormal brain activity and seizures as well as various developmental delays. Taz is a fabulous little girl (frequently described as a ‘livewire’) with endless energy and an extremely busy brain. [/p][p]Recently Taz lost all of her speech through her epilepsy. It was heartbreaking. Prior to this her speech had been developing slowly but surely and she could use four word sentences. She lost all her words and walked around in a daze, we were devastated, it felt like we’d lost our little girl. Shortly after this we started Taz on the ketogenic diet on the advice of our consultant. This is an extremely strict diet, tailored for Taz and managed by a hospital dietician. Everything we give her, for every meal, has to be weighed to the gram. You can read more about it and what it involves [url=https://lifewithalivewire.wordpress.com/2018/01/08/treating-epilepsy-with-food/]here[/url]. Taz has recently started to ‘switch on’ again and she is getting some words back. I find it hard to put into words how wonderful this feels, it feels like she is coming back to us. The diet is a lot of work but it feels like we are able to do something to help our little girl. Without The Daisy Garland, the diet would simply not have been an option for us. They have funded 18 ketogenic dieticians in hospitals across the UK (one of which is Taz’s) - each dietitian costs up to £47,000 per annum.[/p][p]The charity also provides monitors to help keep children with epilepsy safe while they sleep. We have a monitor which alerts us if Taz has a seizure in the night – we’d be lost without it. [/p][p]Please give what you can to help this amazing charity that’s changing lives. [/p]
Team OV Walk 18 Miles for The Daisy Garland image 1

Share their story

Event

Personal Challenge Date

23 Jun 2018

Charity

The Daisy Garland

The Daisy Garland

Supporters

21-Jun-2018

Anonymous

£10.00

20-Jun-2018

Malc

£30.00 plus £7.50 Gift Aid

20-Jun-2018

Jo M

Good luck to you all, a great walk for a fantastic charity. One step at a time Lise, you’ll be fine!

£18.00 plus £4.50 Gift Aid

20-Jun-2018

Derek Phillips

Good luck, what a great effort!

£10.00 plus £2.50 Gift Aid

20-Jun-2018

Anonymous

£5.00 plus £1.25 Gift Aid

20-Jun-2018

Chris and Alfie

Good Luck Cathryn and Ally!

£20.00 plus £5.00 Gift Aid

19-Jun-2018

Hannah Fujita

Good luck Sharon and team!

£20.00 plus £5.00 Gift Aid

19-Jun-2018

Will Foxwell

Go team OV! I hope you’ve all got good socks.

£50.00 plus £12.50 Gift Aid

19-Jun-2018

Maf

Good luck Sharon, this is a proper challenge that I'm not sure you're prepared for, but I know you'll totally manage anyway! xxxooo

£50.00 plus £12.50 Gift Aid

19-Jun-2018

Sophie

£10.00 plus £2.50 Gift Aid

One Voice Media

One Voice Media

Celia Honan

Celia Honan

Jennifer Nimmo

Jennifer Nimmo

Sharon Foxwell

Sharon Foxwell

Jo Holdom

Jo Holdom

Ally Stenner

Ally Stenner

Cathryn Frost

Cathryn Frost

Lisa Vanstone

Lisa Vanstone

Georgina Davie

Georgina Davie