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Team Thomas

5 team members

Challenge complete

Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Team story

[p]Hi, thanks for visiting our page![/p][p]We are embarking on a water wipe out 5k mud run to raise money for Thomas' Fund, set up in the memory of our gorgeous cousin Thomas who sadly passed away from cancer in November 2015 aged just 4 years old.[/p][p]Thomas' Fund at CCLG is raising funds to support research into low grade glioma, a type of childhood brain tumours.[/p][p]Thomas was a lively and happy little boy who enjoyed his bikes, swimming and going to the beach. At just over 18 months old his appetite diminished and he started vomiting. After a few trips to the GP’s, paediatricians and A&E, Thomas was admitted to hospital in April 2013. An MRI scan revealed he had a tumour in the top of his spinal cord and extensive spread throughout the lining of his spinal cord and brain.[/p][p]Two days later he had surgery on his spine to obtain a biopsy and had to lie flat for five days. The biopsy results weren’t clear but a diagnosis of pilocytic astrocytoma was made. The following week Thomas deteriorated again and required further neurosurgery to insert a shunt into his brain to drain fluid into his abdomen. He started chemotherapy two days later.[/p][p]Over the following two years Thomas trialled four different chemotherapy protocols to try to gain control of the tumour. He suffered from pain, peripheral neuropathy, kidney damage, constipation, diarrhoea, sickness and a weakened immune system requiring numerous hospital admissions for antibiotics. In total Thomas had 77 doses of chemotherapy and 18 anaesthetics, 9 of which were for surgery. He had 2 admissions to PICU for complex seizures. Unfortunately the tumour continued to grow and Thomas suffered from behavioural changes, agitation, speech loss and seizures.[/p][p]Given his problems, quality of life and failure to improve, Thomas' parents, Nat and Nicky, decided to palliate Thomas in August 2015; he passed away in November 2015 at the age of 4.[/p][p][img]http://www.cclg.org.uk/write/MediaUploads/Support%20us%20section/Special%20Named%20Funds/Thomas's_Fund_Logo.jpg" alt="Thomas's Fund Logo" width="300[/img]Thomas was inseparable from Geoffrey the Giraffe and is remembered for his gorgeous hair (which weirdly didn’t fall out with carboplatin), his big blue eyes, and his amazing stubbornness; after a complex and particularly serious seizure which left him with temporary arm and leg weakness he decided he would rehab himself back to full mobility – and after a few hair-raisingly wobbly days he was back to his usual zooming around. He was surfing in Cornwall a week or two later![/p][p]Since his death we have learnt why Thomas did not respond to treatment. More tissue samples were analysed which showed a newly recognised type of tumour - disseminated oligodendroglial-like leptomeningeal tumour of childhood. It has yet to be classified on the WHO grading scale and is often hard to distinguish from low-grade glioma. The diagnosis of these tumours is notoriously difficult and due to their rarity there has been very little research done on either the tumour characteristics or which treatments are effective. It is a progressive disease with no effective treatment at the present time. Thomas’ tissue is the first of its type to be banked with CCLG and so we hope to help raise funds into more research for effective treatments and to help current treatments to have fewer side effects.[/p][p]Through Virgin Money Giving, you can sponsor us and donations will be quickly processed and passed to charities straight away. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. We really appreciate all your support and thank you for any donations![/p][p][img]http://www.cclg.org.uk/write/MediaUploads/Support%20us%20section/Special%20Named%20Funds/Thomas_picture.jpg" alt="Thomas picture" width="300[/img][/p]

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Event

Personal Challenge Date

07 Jul 2018

Campaign

Supporters

Jul 8, 2018

Jeremy and Helen

Double the distance, so we've doubled our donation - well done all xx

£15.00 plus £3.75 Gift Aid

Jul 7, 2018

Alex M

:)

£5.00 plus £1.25 Gift Aid

Jul 7, 2018

Jen Y

Well done Team Thomas! X

£10.00 plus £2.50 Gift Aid

Jul 7, 2018

Anonymous

Smashed it guys! 10k as well

£20.00 plus £5.00 Gift Aid

Jul 6, 2018

Francesca

Enjoy a thoroughly mucky time tomorrow, Team Thomas!

£15.00 plus £3.75 Gift Aid

Jul 6, 2018

Jacqui

You'll smash it guys!! Great cause. Have fun. Xxx

£15.00 plus £3.75 Gift Aid

Jul 6, 2018

Laura H

Good Luck

£10.00

Jul 6, 2018

Lauras Nan and Gramps

Go Team Thomas!

£10.00 plus £2.50 Gift Aid

Jul 6, 2018

Anonymous

Jul 6, 2018

Mace930

Think what your doing is outstanding and for such a wonderful cause too. Good luck and stay safe out there x

£60.00 plus £15.00 Gift Aid

Holly Broughton

Holly Broughton

Pheebs Broughton

Pheebs Broughton

Josh Broughton

Josh Broughton

Nathan Lloyd

Nathan Lloyd

Laura Rapson

Laura Rapson