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Team Thomas

11 team members

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Team story

[p]Hi, thanks for visiting our page![/p][p]This summer we - Holly, Josh, Pheebs, Nathan, Laura, Megan, Matt, James, Roberta, Mike, Emma, David, Jane and Lynn - are raising funds for a charity that is very close to us.[/p][p]As well as a 10k mud run in July, we’re aiming to complete a marathon along the Jurassic coast in August. We will endeavour to complete the 26.2 miles along the undulating cliffs of Dorset, whether walking, running or crawling. The finale a steep, long climb up and back down Golden Cap - the highest point on the south coast.[/p][p]We are doing this ridiculously hilly challenge to raise money for Thomas' Fund, set up in the memory of our cousin Thomas who sadly passed away from cancer in 2015 aged just 4.[/p][p]Thomas was a lively, happy little boy who enjoyed bikes, swimming and going to the beach. However, at just over 18 months old his appetite diminished and he started vomiting. After a few trips to the GP’s, paediatricians and A&E, Thomas was admitted to hospital in April 2013. An MRI scan revealed he had a tumour in the top of his spinal cord and extensive spread throughout the lining of his spinal cord and brain.[/p][p]Two days later he had surgery on his spine to obtain a biopsy and had to lie flat for five days. The biopsy results weren’t clear but a diagnosis of pilocytic astrocytoma was made. The following week Thomas deteriorated again and required further neurosurgery to insert a shunt into his brain to drain fluid into his abdomen. He started chemotherapy two days later.[/p][p]Over the following two years Thomas trialled four different chemotherapy protocols to try to gain control of the tumour. He suffered from pain, peripheral neuropathy, kidney damage, constipation, diarrhoea, sickness and a weakened immune system requiring numerous hospital admissions for antibiotics. In total Thomas had 77 doses of chemotherapy and 18 anaesthetics, 9 of which were for surgery. He had 2 admissions to PICU for complex seizures. Unfortunately the tumour continued to grow and Thomas suffered from behavioural changes, agitation, speech loss and seizures.[/p][p]Given his problems, quality of life and failure to improve, Thomas' parents, Nat and Nicky, decided to palliate Thomas in August 2015; he passed away in November 2015 at the age of 4.[/p][p]Thomas was inseparable from Geoffrey the Giraffe and is remembered for his gorgeous hair (which weirdly didn’t fall out with carboplatin), his big blue eyes, and his amazing stubbornness; after a complex and particularly serious seizure which left him with temporary arm and leg weakness he decided he would rehab himself back to full mobility – and after a few hair-raisingly wobbly days he was back to his usual zooming around. He was surfing in Cornwall a week or two later![/p][p]Since his death we have learnt why Thomas did not respond to treatment. More tissue samples were analysed which showed a newly recognised type of tumour - disseminated oligodendroglial-like leptomeningeal tumour of childhood. It has yet to be classified on the WHO grading scale and is often hard to distinguish from low-grade glioma. The diagnosis of these tumours is notoriously difficult and due to their rarity there has been very little research done on either the tumour characteristics or which treatments are effective. It is a progressive disease with no effective treatment at the present time. Thomas’ tissue is the first of its type to be banked with CCLG and so we hope to help raise funds into more research for effective treatments and to help current treatments to have fewer side effects.[/p]
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Event

Personal Challenge Date

31 Aug 2019

Campaign

Supporters

Nov 15, 2019

Jean and Bob Bartlett (Nana and Gdad)

£40.00

Nov 15, 2019

Charmouth Fish Bar

£40.00

Oct 16, 2019

Nicky

Emma’s offline donations

£210.00

Sep 10, 2019

Jane Birtwistle

Our quiz team came first, so donating our winnings😊

£25.00

Aug 31, 2019

Ruth

Well done on a great accomplishment.

£15.00

Aug 27, 2019

Thomas USA and Canada

Aug 19, 2019

Lorna

Aug 15, 2019

Peej - PJ - Phoebe 2-0

SO proud of everyone involved x x

Aug 14, 2019

Peter B.

Great cause, Broughtons and friends. Thanks for signalling it Mike. Best, Peter B

£50.00 plus £12.50 Gift Aid

Aug 14, 2019

Warren

Well done Holly and all in Team Thomas. What an incredible journey and achievement!

£15.00 plus £3.75 Gift Aid

Holly Broughton

Holly Broughton

James Smith

James Smith

Pheebs Broughton

Pheebs Broughton

Emma Bartlett

Emma Bartlett

Roberta Broughton

Roberta Broughton

Megan Birtwistle

Megan Birtwistle

Nathan Lloyd

Nathan Lloyd

Josh Broughton

Josh Broughton

Matt Smith

Matt Smith

Laura Rapson

Laura Rapson

Mike Broughton

Mike Broughton