Team Wren

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

Team story

[p]We are three sisters, our husbands and our childhood friends taking part in the [b]Great North Run[/b] half marathon for [b]Wren[/b] and other children affected by [b]Congenital CMV[/b] and other disabilities. [/p][p][url=http://cmvaction.org.uk/][b]CMV Action[/b][/url] supports affected families, raises awareness and campaigns for further research towards a vaccination against cytomegalovirus, the UK's leading cause of childhood disability. 63% of the funds we raise will go to CMV Action.[/p][p][url=http://newlifecharity.co.uk/][b]Newlife, the Charity for Disabled Children[/b][/url], provide vital equipment to enable disabled children and support families in need. 37% of the funds we raise will go to Newlife.[/p][p]This is our story:[/p][p]CMV has turned our lives upside down. Our family calendar is stuffed with appointments, therapy and visits from professionals. Our home is full of specialist equipment and a ramp leads up to our front door. Our fridge and cupboards are overflowing with high calorie food. My brow has become furrowed but my arms are now toned to perfection![/p][p]All this because of a tiny, common and almost asymptomatic virus which struck me and my unborn child early in pregnancy. While I had a niggling doubt that something was amiss, I had no idea that cytomegalovirus was adversely affecting the development of our baby’s nervous system. When Wren was born the only indication was a bloom of tiny purple spots on her crinkly little face. She later failed her new born hearing test and, as a result, was subject to further investigations which revealed the culprit to be CMV.[/p][p]The early days were tough with frantic internet searches and endless appointments. I woke daily with the words ‘congenital cytomegalovirus’ rolling over and over in my mind. Wren underwent antiviral treatment and we consoled ourselves with the statistics: most children with CMV will be OK.[/p][p]As the months went by and her development started to stall we realised we were among the unlucky few. Wren was diagnosed with cerebral palsy as a result of congenital CMV. We endured the saddest of times, holding things together, keeping everyone fed and educated and clean, unable to contemplate the future or picture who our girl might become.[/p][p]Wren is four now. She needs help to sit, stand, walk, eat, drink, toilet. She uses a computer to communicate alongside Makaton signing. She has a huge team of professionals to help with every aspect of her condition and a busy schedule of therapy and school. She loves to spend time with her siblings and friends. She understands everything people say and has a great sense of humour, playing tricks and teasing us at any opportunity.[/p][p]Our wonderful girl faces so many hurdles due to CMV, as do many children in the UK. It need not be this way. CMV Action are dedicated to increasing awareness, promoting simple measures to avoid infection during pregnancy and developing a vaccine. The money we raise will hopefully prevent other children facing similar challenges to those Wren endures. By supporting Newlife, we also hope to support children with disabilities to access the specialist equipment they rely on. [/p][p]Please support us in any way you can; a donation of any size, a share or a mention to a friend, or come and cheer us on on the day. [/p][p]Thank you[/p][p][br][/p][p][br][/p][p][br][/p]
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Supporters


Oct 19, 2018

Sue & Alan

£20.00

plus £5.00 Gift Aid


Oct 17, 2018

Craig and Gill x

Well do to the Rhodes boys got to Love you xx

£10.00

plus £2.50 Gift Aid


Oct 15, 2018

Your Pals at Harry Garlick

Well done Ben and Barney, great effort guys for a great cause.

£50.00

plus £12.50 Gift Aid


Oct 14, 2018

Usmaan Ali

Good look Ben and Barrknee

£30.00


Oct 14, 2018

McKinnas

£30.00

plus £7.50 Gift Aid


Oct 14, 2018

Hannah

Good luck! You’ll smash it

£20.00

plus £5.00 Gift Aid


Oct 14, 2018

gareth

best wishes to all involved

£10.00


Oct 13, 2018

Jess

£5.00


Oct 13, 2018

Linda A

Go Ben and Barnee -good luck xx

£15.00

plus £3.75 Gift Aid


Oct 13, 2018

Bob and Thelma

Fantastic Team Wren!!!! Good luck tomorrow childhood friends. Better late than never.

£100.00

plus £25.00 Gift Aid

Anna Steer

Anna Steer

Ben Rhodes

Ben Rhodes

Barnaby Rhodes

Barnaby Rhodes

Leah Stuart

Leah Stuart

John Dale

John Dale

Richard Stuart

Richard Stuart

John Steer

John Steer

Erika Dale

Erika Dale

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