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Tom Burns

Tom Burns

Tom and Terry Burns fundraising page

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]We are cycling the Duchenne Dash, a gruelling 24 hour bike ride, from London to Paris to help save the life of Eli and all those with Duchenne Muscular Dystrophy. [/p][p][/p][p][b]We need your support. [/b][/p][p][/p][p][url=http://www.duchennedash.com/]www.duchennedash.com[/url][/p][p][/p][p]The Duchenne Children’s Trust was set up by Emily and Nick Crossley, after their son, Eli was shockingly and very suddenly diagnosed with Duchenne Muscular Dystrophy, which is the most common fatal genetic disorder to affect boys (the disease mainly affects boys). They cannot produce dystrophin, a protein necessary for muscle survival and as a result, every skeletal muscle in the body deteriorates.[/p][p][/p][p]The Trust’s video will tell you more: [url=http://www.youtube.com/watch?v=bMVxYQzzNbY]http://www.youtube.com/watch?v=bMVxYQzzNbY[/url][/p][p][/p][p][b][i]At the moment DMD is 100% fatal with no cure; most children die in their early 20’s from heart or respiratory failure and every child ends up in a wheelchair by the age of 12-14.[/i][/b][/p][p][/p][p][i]HOWEVER[/i] scientists believe they are on the edge of finding a substantial treatment and possible cure for the disease to make these facts no longer true. As a result every penny of the money being raised is being spent RIGHT NOW on research. The Duchenne Children’s Trust is funding 8 projects in the UK and another in Holland – all of which show real promise. And they've met with politicians, scientists, regulators, and pharmaceutical companies – to push the case for quicker access to drugs.[/p][p][/p][p]This disease moves fast and we don’t have time as a luxury.We are joining the fight to raise funds to speed up the research and clinical trials so we can get a drug that will stop this devastating disease NOW. The race is on to cycle from London to Paris in a time frame of 24 hours, so we can win the most important race, to End Duchenne in Ten. We’ve got 8 years left.  With hope, courage, determination and your help, we will make this happen![/p][p][/p]

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Supporters


Jul 5, 2015

Anon

£50.00

plus £12.50 Gift Aid


Jun 29, 2015

Anonymous

Sorry Tom, totally forgot about this. Belated well done / congrats!

£10.00

plus £2.50 Gift Aid


Jun 21, 2015

Andy Tighe

Finally I did it Tom! Well done!

£20.00

plus £5.00 Gift Aid


Jun 11, 2015

Anonymous

Well done....a great effort. When I say great effort, of course I mean convincing your family to let you do it.

£10.00

plus £2.50 Gift Aid


Jun 9, 2015

Anonymous

CONGRATULATIONS TOM

£20.00

plus £5.00 Gift Aid


Jun 9, 2015

Anonymous

Well done Tom - remember this IS the last time!

£20.00

plus £5.00 Gift Aid


Jun 6, 2015

Anonymous

£10.00

plus £2.50 Gift Aid


Jun 5, 2015

Em, Dom and Edie

£150.00

plus £37.50 Gift Aid


Jun 4, 2015

Tom & Jay

Sounds like a very worthy cause, good luck!!

£20.00

plus £5.00 Gift Aid


Jun 3, 2015

Anonymous

Good luck

£10.00

plus £2.50 Gift Aid

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