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Caroline & Sean Watts's fundraising page

2 team members

Challenge complete

Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Team story

[p]Hi[/p][p]Thanks for visiting our page. [/p][p]On January 19th 2012, we welcomed into the world our first child, a little girl called Cerys Megan Watts. We were over the moon. [/p][p]On the 2nd day of her life, we were escorted into a room at the hospital and told the devastating news that Cerys had been diagnosed with a rare genetic disorder called Edwards Syndrome, the condition was life limiting, and her life expectancy was a few months at best. We had had no knowledge of this during the pregnancy and were completely devastated. [/p][p]Edwards’ Syndrome is a serious genetic disorder that leads to severe mental and physical growth retardation, abnormalities in the heart and other organs and malformed features.  It is believed that half the babies born with this Syndrome do not survive beyond the first week.[/p][p]Cerys was a fighter though, and after 2 weeks in hospital all her cables were unplugged and without knowing how long Cerys would live for we returned home keen to cherish every possible moment we had with her and to make sure she lived as happy a life as she could. [/p][p]During Cerys’s life we were supported by 3 wonderful charities, who helped us as best they could come to terms with her condition, supported us in raising a child with complex medical needs, and helped brace us for the unbearable loss that we were to face. These charities were;-[/p][p]1. SOFT UK - This is a charity which offers support and guidance to parents of children with Edwards & Patau's Syndrome as well as parents who have received a diagnosis during pregnancy. SOFT UK  helped us to understand Cerys' condition and the limitations it may place upon her. We were also introduced to other families whom we were able to lean on for advice and support whenever we encountered any challenges, and we met other children some of whom have proved the medics very wrong.[/p][p]2. The Jessie May Trust - This is a charity which provides respite care at home for families with terminally ill children. They visited us several times, looking after Cerys whilst we were able to catch up with chores, or go to the supermarket, simple things which can often prove impossible when you have a child with complex medical needs. They have also provided wonderful bereavment support through their purple parents group which we attend 4 times a year.[/p][p]3. Childrens Hospice South West - We were reluctant at first to accept the support of the hospice. We feared it would be a sad place, however we were wrong. The nursing staff at the hospice were amazing, they never ceased in trying to find solutions to Cerys' feeding issues, they enabled us to re-charge our batteries, supported us in coming to terms with what had happened, and helped us to create some special memories, such as Cerys's first swim which took place in the hospice pool. A moment we never thought we would have, a very precious moment to us now. [/p][p]Cerys surprised everyone, and was a real fighter. She gave us 16 wonderful weeks, but eventually it all started to become too much for her, and she passed away in our arms at the Hospice on 15th May 2012.[/p][p]Neither of us are runners, but we wanted to say thank you to the 3 charities that supported us and helped us to make the most of the time we had with Cerys. We still know many of the families they continue to help, what they do is truly amazing. So on September 15th 2013 we have decided to run the Bristol Half Marathon. We have been training now for 3 months, and have gone from not being able to run 100 metres to running over 10 miles. [/p][p]If you are able to support us at all, we would be extremely grateful. All donations will be made to the charities in Cerys' memory. Thank you for helping us keep her legacy alive.[/p][p] [/p][p]Sean & Caroline x[/p][p]To read Cerys' story please go to : [url=http://www.ceryswatts.co.uk]www.ceryswatts.co.uk[/url][/p][p]To follow our training on Twitter; @cwattsy12[/p][p] [/p][p] [/p][p] [/p]

Share their story


2013 Bristol Half Marathon

2013 Bristol Half Marathon

15 Sep 2013




Jessie May

Jessie May

Childrens Hospice South West

Childrens Hospice South West



Simon McP

Congrats, that was a massive achievement. Very proud of you guys!

£100.00 plus £25.00 Gift Aid


Helen Williams

Well done all of you!

£25.00 plus £6.25 Gift Aid



£10.00 plus £2.50 Gift Aid



Well done Caroline



Jeanette and Derek

Wonderful effort!




£145.00 plus £36.25 Gift Aid


Steve and Vic

Well done both, a great achievement!

£40.00 plus £10.00 Gift Aid


Gill & Ralph

Well done Caroline & Sean!

£50.00 plus £12.50 Gift Aid


Richard Mannion

A fantastic effort both of you, I'm full of admiration.

£100.00 plus £25.00 Gift Aid


Chris Lewis

Well done? Full marathon next??

£20.00 plus £5.00 Gift Aid

Caroline Watts

Caroline Watts

Sean Watts

Sean Watts