Our site needs cookies

We need cookies to help you sign in, create a fundraising page and donate. If you want to fundraise or donate on our site, you will need to turn on cookies How to turn on cookies.

It looks like you are trying to access a charity account.

Please click here for the charity sign in page. If you are not trying to access a charity account, please contact us.

Profile

ali everett

Prudential Ride London 100

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]This year, I am taking part in the Prudential Ride London which is an 100 mile cycle ride through the city, starting at the Olympic Park and finishing in the Mall. I am fundraising for the Association for Glycogen Storage Disease (AGSD). This is a small charity which offers support and information to those affected and funds vital research into improving ways to manage and understand the condition. [/p][p]AGSD is a rare condition that has affected one of my family friends (and valued customers). Ed and Sylivia's young grandaughter Nora was just 1 when she got rushed to hospital but it took almost a year to get her diagnosis, not unusual for many GSDs. [/p][p]Nora has to be on a ‘no sugar’ diet which includes avoiding the natural sugars in fruit and vegetables. So basically she lives on meat, fish and water. She’s not allowed some sweeteners either so every food label has to be read. She needs to eat a high protein meal or snack every two hours because her energy runs out and she can’t access the glycogen stored in her liver and muscles. [/p][p]Thankkfully, Nora has a very mild form of GSD. Some children have to be constantly tube fed day and night. This can continue into adulthood and of course some children don’t make it.[/p][p]Anything you can donate makes a huge difference to children like Nora and all those living with this condition. Thanks for your support! [/p][p][br][/p]
Prudential Ride London 100 image 1
Prudential Ride London 100 image 2

Share ali's story

Supporters

Jul 11, 2019

Lou Dylan and Daisy

Good luck!

£15.00 plus £3.75 Gift Aid

Jul 10, 2019

Sharon, Pete and Brodie

Good luck Ali x

£30.00 plus £7.50 Gift Aid

Jul 2, 2019

Adrian Tindall

Best of luck Ali!

£30.00 plus £7.50 Gift Aid

Jun 7, 2019

Anonymous

£20.00 plus £5.00 Gift Aid

May 27, 2019

Helen and Angus Wainwright

Good luck Ali - may the wind always be at your back!

£50.00 plus £12.50 Gift Aid

May 24, 2019

Miranda and Richard Kinder

Enjoy the ride-especially Box Hill. You are raising money for a great cause. Many thanks.

£40.00 plus £10.00 Gift Aid

May 21, 2019

Anonymous

£25.00 plus £6.25 Gift Aid

Apr 29, 2019

Sylvia

Thank you Ali from everyone at AGSD-UK. Your pedal power is much appreciated.

£50.00 plus £12.50 Gift Aid

Apr 28, 2019

Amy and James

Good luck Ali! A long way to ride and important cause!

£5.00 plus £1.25 Gift Aid

Apr 25, 2019

Sara Hursey

Good luck Ali. That's a long way! But I know you'll smash it

£5.00