Survivors fundraising page

James Leahy
Jamie Pownceby
Bradley Smith
Joseph Healy

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

Team story

[p]Hi, thanks for visiting our page. Through Virgin Money Giving, you can sponsor us and donations will be quickly processed and passed to charities. The reason we are fundraising for these two amazing charities is that both Joseph and I have both been affected by a child with a heart defect.  [/p] [p]George's story.[/p] [p]George Healy was born on 28-06-2015 with a heart defect called Transposition of the great arteries.[/p] [p]Transposition of the great arteries – or TGA for short – means that the pulmonary artery arises from the left ventricle instead of the right, and the aorta arises from the right ventricle instead of the left. [/p] [p]My wife was 16 weeks pregnant when we was told that one of our twins (twin 1) had a suspect heart defect. My wife and I had an upsetting 6 weeks wait until a heart specialist from great ormond street came down to our local hospital to do a heart scan. We thought waiting 6 weeks was a long time but waiting the 10 minutes for the heart specialist to sit down and talk to us felt like it was a lifetime. That moment it was confirmed that our son had a heart defect words cannot explain how we felt. The next couple of weeks were hard so many questions to ask and we felt there was no one to answer them. I remember that first day where we meet the GOSH team and all our question were answered and the relief we felt. We knew at this point the best would be looking after our son. On 28-06-2015 at 07:31 George and Tommy made an appearance at Luton and Dunstable hospital. George and myself had to leave mummy and Tommy as we were rushed to great ormond street by the CATS team. At 13:00 George had an emergency operation called a balloon septostomy this was to make sure George got enough oxygen circulating around his body to survive while he was waiting for surgical treatment.[/p] [p]On 06-07-2015 George had the switch procedure and started his recovery in Flamingo ward. The love and support my family received from the staff at GOSH will always be in my heart.[/p] [p]George is getting stronger and stronger each and everyday. [/p] [p][/p] [p]Amelia's story[/p] [p][lt]br /[gt] On the 8th July 2015 at the Evelina children’s hospital my partner and I received the devastating news that our unborn daughter Amelia has a serious heart defect called atrioventricular septal defect (AVSD). Many of you may not of heard of the condition before so below is a brief description of it .[/p] [p][lt]br /[gt] An atrioventricular septal defect (AVSD) is a birth defect of the heart in which there are holes between chambers of the heart, and the valves that control the flow of blood between these chambers may not be formed correctly. This means that blood flows where it normally should not be able to, and extra blood flows to the lungs. This defect is also known as atrioventricular canal (AV canal) defect or endocardial cushion defect.[lt]br /[gt] There are two general types of AVSD that can occur, depending on which structures are not formed correctly:[/p] [ol] [li][b]Complete AVSD[/b][/li] [li]This occurs when there is a large opening in the center of the heart where the wall from the top of the heart (atrial septum) and the wall from the bottom of the heart (ventricular septum) would normally meet. This means there is a hole in both the atrial septum and the ventricular septum. Also, instead of blood flowing from the [i]atria[/i] to the [i]ventricles[/i] through a[i]tricuspid valve[/i] on the right side of the heart and a [i]mitral valve[/i] on the left side of the heart, there is one common valve in the middle of the heart. This valve has abnormal leaflets or flaps and often does not close tightly. These defects occur because during development, the walls between the chambers (septa) did not grow all the way into the middle of the heart, and the early common valve failed to separate into two distinct valves (tricuspid and mitral valves). A complete AVSD allows blood to flow between all four chambers through the central opening.[/li] [/ol] [p][b]Partial or Incomplete AVSD[/b][/p] [p][/p] This occurs when not all the defects of a complete AVSD occurred. There is usually a hole in the wall between the atria or a hole in the wall between the ventricles near the middle of the heart, but there are usually two valves between the atria and ventricles (not a common valve). However, with a partial AVSD, one of the valves (usually the mitral valve) does not close completely and allows blood to leak backward.[lt]br /[gt] [b][lt]br /[gt] [/b]Unfortunately Amelia has complete AVSD which is the worse case, along with the devastating news about her heart we were also told that there will be a 30%-40% chance she will also have down syndrome, our consultant offered us an appointment to have an Amniocentesis done which we decided not to have as down syndrome would not affect the way we would love her. Our consultant Gurleen Sharland and our Fetal cardiology nurse Judy Tenenbaum have shown us support that we never thought was possible, they have arranged for my partner to be scanned every three weeks and have planned for her to be induced late october, once Amelia is born she will then be taken straight to the intensive care unit where a range of tests and scans will be preformed to decided if she needs open heart surgery straight away or within the first 4 months[p][/p]

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Supporters


Sep 28, 2016

Brian Hurley

Great work guys. Keep it going.

£10.00

plus £2.50 Gift Aid


Sep 26, 2016

Anonymous

Another friend of the "Yanks" you met in Spain.

£15.00


Sep 20, 2016

Anonymous

COYS

£100.00


Sep 19, 2016

Damian Grantham

Well done lads.


Sep 8, 2016

Anonymous


Sep 1, 2016

Anonymous

Well done chaps great effort even to spends that amount of time with James Leahy !!

£50.00

plus £12.50 Gift Aid


Aug 31, 2016

Paul Lindsay

Unbelievable effort fellas! Very very well done

£25.00

plus £6.25 Gift Aid


Aug 29, 2016

Anonymous

Another friend of the "Yanks" you met and helped in Spain.

£20.00


Aug 29, 2016

Anonymous

A wonderful adventure for a most worthy cause. From another friend of the Tank you helped in Spain.

£20.00


Aug 29, 2016

Anonymous

Well done to everyone involved

£20.00

plus £5.00 Gift Aid

James Leahy

James Leahy

Jamie Pownceby

Jamie Pownceby

Bradley Smith

Bradley Smith

Joseph Healy

Joseph Healy

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