Alasdair Robertson DashMAX 2017

Alasdair Robertson


Total raised so far£0.00

Total plus Gift Aid: £0.00


Raised offline: £0.00

Team story

[p][span=margin: 0px; color: black;][b][lt]span style="text-decoration: underline;"[gt][lt]span style="color: #ff0000;"[gt]WE MADE IT!![/span][lt]/span[gt][/b][lt]/span[gt][/p][p][span=margin: 0px; color: black;]In December 2014 Felix, my now five-year-old son, was diagnosed with Duchenne Muscular Dystrophy, an incurable and fatal muscle wasting disease that kills more children than any other genetic condition. There is accelerating deterioration from birth, resulting in a significant decrease in quality of life by age 7 to 8, wheelchair dependency by early teens, total dependency by late teens and a lingering death in mid-twenties from lung failure and heart disease.[/span][/p] [p][span=margin: 0px; color: black;]The reality is not as hopeless as it sounds, thankfully! Real progress is being made in the development of new treatments that have the potential to alter and hopefully even cure Duchenne. And in the shorter term, ongoing research is identifying a combination of drugs approved for the treatment of other diseases that are showing real promise in slowing and perhaps even halting the progress of the disease.[/span][/p] [p][span=margin: 0px; color: black;]Whether it’s novel or repurposed drugs, their development costs a lot of money, which is I and a bunch fo mates have just completed a bike ride from London to Monaco, covering 1,500 km’s and climbing 18,000 m’s in 9 days, with the aim being to raise as much money as possible to further vital research and get a combination or repurposed drugs in to trials and patients as quickly as possible.[/span][/p] [p][span=margin: 0px; color: black;]All the money raised will go to Duchenne UK. The charity was founded by Emily Crossley and Alex Johnson, both mothers of Duchenne boys. They’re unbelievably passionate and effective and almost all (90% plus) of the money they raise and receive funds research and trials. The charity is transforming the outlook for all Duchenne patients.[/span][/p] [p][span=margin: 0px; color: black;]There really is no time to waste if we’re going to save this and future generations of boys so please give as generously as you possibly can.[/span][/p] [p][span=margin: 0px; color: black;]THANK YOU![/span][/p][vmgvideo class="ql-video" frameborder="0" allowfullscreen="true" src=""][/vmgvideo]


Personal Challenge Date

17 Jun 2017




Jan 29, 2018


Well done Alasdair! So sorry this is so late having pledged I would support you, but hopefully it all ends up in the same pot eventually.


plus £50.00 Gift Aid

Oct 30, 2017


Ali, Absolutely wonderful with the amount you are raising and I do hope that it continues to flood in. Well done. Richard and Julie Greed


plus £25.00 Gift Aid

Oct 21, 2017

Robbie at No 9


plus £6.25 Gift Aid

Aug 16, 2017

John Hughes

Inspirational Ali.


plus £62.50 Gift Aid

Aug 11, 2017

Ralph Minott

Alasdair and the team, well done


plus £12.50 Gift Aid

Aug 8, 2017

David Beresford

Well done Ali and team. Sorry about the delay in donating!


plus £12.50 Gift Aid

Aug 5, 2017

An Evening of Note

Well done Ali, with love from all those who made an Evening of Notexx


Jul 31, 2017

Jim and Julie Hillis


plus £25.00 Gift Aid

Jul 25, 2017

Anonymous from CULS


plus £3.75 Gift Aid

Jul 13, 2017

Well done Alasdair


Alasdair Robertson

Alasdair Robertson

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