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Alasdair Robertson DashMAX 2017

1 team member

Challenge complete

Fundraising for this challenge has ended so we're no longer accepting donations. Thanks to everyone who supported this challenge.

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Team story

[p][span=margin: 0px; color: black;][b][lt]span style="text-decoration: underline;"[gt][lt]span style="color: #ff0000;"[gt]WE MADE IT!![/span][lt]/span[gt][/b][lt]/span[gt][/p][p][span=margin: 0px; color: black;]In December 2014 Felix, my now five-year-old son, was diagnosed with Duchenne Muscular Dystrophy, an incurable and fatal muscle wasting disease that kills more children than any other genetic condition. There is accelerating deterioration from birth, resulting in a significant decrease in quality of life by age 7 to 8, wheelchair dependency by early teens, total dependency by late teens and a lingering death in mid-twenties from lung failure and heart disease.[/span][/p] [p][span=margin: 0px; color: black;]The reality is not as hopeless as it sounds, thankfully! Real progress is being made in the development of new treatments that have the potential to alter and hopefully even cure Duchenne. And in the shorter term, ongoing research is identifying a combination of drugs approved for the treatment of other diseases that are showing real promise in slowing and perhaps even halting the progress of the disease.[/span][/p] [p][span=margin: 0px; color: black;]Whether it’s novel or repurposed drugs, their development costs a lot of money, which is I and a bunch fo mates have just completed a bike ride from London to Monaco, covering 1,500 km’s and climbing 18,000 m’s in 9 days, with the aim being to raise as much money as possible to further vital research and get a combination or repurposed drugs in to trials and patients as quickly as possible.[/span][/p] [p][span=margin: 0px; color: black;]All the money raised will go to Duchenne UK. The charity was founded by Emily Crossley and Alex Johnson, both mothers of Duchenne boys. They’re unbelievably passionate and effective and almost all (90% plus) of the money they raise and receive funds research and trials. The charity is transforming the outlook for all Duchenne patients.[/span][/p] [p][span=margin: 0px; color: black;]There really is no time to waste if we’re going to save this and future generations of boys so please give as generously as you possibly can.[/span][/p] [p][span=margin: 0px; color: black;]THANK YOU![/span][/p][vmgvideo class="ql-video" frameborder="0" allowfullscreen="true" src="https://www.youtube.com/embed/RT6NbwZVLmI?showinfo=0&rel=0&iv_load_policy=3"][/vmgvideo]

Share their story

Event

Personal Challenge Date

17 Jun 2017

Campaign

Charity

Supporters

29-Jan-2018

Mulls

Well done Alasdair! So sorry this is so late having pledged I would support you, but hopefully it all ends up in the same pot eventually.

£200.00 plus £50.00 Gift Aid

30-Oct-2017

Anonymous

Ali, Absolutely wonderful with the amount you are raising and I do hope that it continues to flood in. Well done. Richard and Julie Greed

£100.00 plus £25.00 Gift Aid

21-Oct-2017

Robbie at No 9

£25.00 plus £6.25 Gift Aid

16-Aug-2017

John Hughes

Inspirational Ali.

£250.00 plus £62.50 Gift Aid

11-Aug-2017

Ralph Minott

Alasdair and the team, well done

£50.00 plus £12.50 Gift Aid

08-Aug-2017

David Beresford

Well done Ali and team. Sorry about the delay in donating!

£50.00 plus £12.50 Gift Aid

05-Aug-2017

An Evening of Note

Well done Ali, with love from all those who made an Evening of Notexx

£300.00

31-Jul-2017

Jim and Julie Hillis

£100.00 plus £25.00 Gift Aid

25-Jul-2017

Anonymous from CULS

£15.00 plus £3.75 Gift Aid

13-Jul-2017

Well done Alasdair

£100.00

Alasdair robertson

Alasdair robertson