Duchenne Dash's fundraising page

Liam Halligan and Alex Thomson

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

Team story

[p]Riding from London to Paris in 24 hours isn't easy. In fact, it's rather painful. Nevertheless, this is my third Duchenne Dash - and I'm doing it because, in my view, The Duchenne Chlidren's Trust is a hugely deserving charity.[/p][p]A few years ago, I learnt that the young son of Emily Crossley, a former Channel 4 News colleague, was suffering from a rare and particularly nasty form of muscular dystrophy called Duchenne. It only affects boys and is fatal. The debilitating symptoms start at the age of 7 or 8, with mobility deteriorating and limbs gradually becoming less able, until the carrier is entirely dependent on care. Yet, all the while, Duchenne sufferers remain mentally entirely unimpaired. Life expectancy is little more than 20 years old.[/p][p]A cure for Duchenne exists. Various scientists have made major break-throughs in recent years and yet the disease, while the most common genetic killer of children, isn't quite prevalent enough for the clinical trials to make commercial sense for the big pharmaceutical companies. Imagine the agony of that. Emily knows there's a way to help little Eli - who is now 8, and showing the early signs of Duchenne. Yet the market won't pay to get the science out of the lab and into general circulation in the form of prescribable drugs.[/p][p]That's why Emily and her husband Nick set up The Duchenne Children's Trust - with the aim of raising the huge sums needed to stage clinical trials. When Krishanan Guru-Murthy, another old friend from Channel 4 News, asked me to help the charity, I was happy to agree. After 2 Duchenne Dashes, and many other events, Emily has already raised the best part of £2 million and co-funded one trial that's currently in progress - which is an astonishing achievement.[/p][p]Yet more money is needed - the best part of a million pounds a year, for several years to come. That's why I'm riding again, and prevailing upon my friends to dig into their pockets. Please give what you can. As well as making a sizeable donation myself, I'm paying all my own costs, as I do every year, so everything you donate will go towards helping Eli Crossley and the hundreds of other Duchenne boys in the UK, and the many thousands across the world.[/p][p]Thanks for reading, Liam [/p]

Event

Campaign

Charity

Supporters


Jun 9, 2015

Anonymous

Good effort big man!

£50.00

plus £12.50 Gift Aid


Jun 8, 2015

Gavin

Who even knew that a Horse could ride a bike?

£10.00

plus £2.50 Gift Aid


Jun 8, 2015

Anonymous

Hope you enjoy it as well as doing it for a good cause. Best wishes, Jane

£20.00

plus £5.00 Gift Aid


Jun 5, 2015

Jojo and Charles

Good luck, Liam! Thinking of you (from our sofa)

£50.00

plus £12.50 Gift Aid


Jun 5, 2015

Bonnie

Good luck!

£20.00

plus £5.00 Gift Aid


Jun 5, 2015

Anne and Rock

Good luck Liam, hope your legs are up to it.

£20.00

plus £5.00 Gift Aid


Jun 5, 2015

Christine o from c4n

Good on you Liam. Good luck - have a great ride x

£10.00

plus £2.50 Gift Aid


Jun 5, 2015

Britt W

Great ride, great cause. You're nuts of course, but hey - best of luck!

£10.00

plus £2.50 Gift Aid


Jun 4, 2015

Gareth Clayfield

Good luck

£10.00

plus £2.50 Gift Aid


Jun 4, 2015

Anonymous

Well done and a very worthy cause. Bonne chance!

£50.00

plus £12.50 Gift Aid

Liam Halligan and Alex Thomson

Liam Halligan and Alex Thomson

Back to Top