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Susie Hewer

Susie Hewer's fundraising page 2018-19

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p][b]Today I have wonderful news and can finally announce that ARUK & the Alzheimer's Society have joined together to become Charity of the Year for the London marathon in 2019. I have dreamt about this ever since I ran my first London marathon 13 years ago![/b][/p][p][b]Their collaboration is called The Dementia Revolution and naturally I'd love to run and support them at the Virgin London Marathon in 2019. I couldn't add this to my existing challenge for the year any sooner as I was sworn to secrecy but you won't be surprised to learn that I will be pounding the street of London again (if I'm lucky enough to gain a place of course!). What I am going to do now is try and earn what's known as a 'Good For Age' place which for my age category is sub 4:30 so the next 10 weeks I will be following a tough training regime to try to achieve the time required at an event in July.[/b][/p][p]Hi, thanks for visiting my page where I am again raising funds for Alzheimer's Research UK. For anyone without experience of dementia and the horrors that it brings, please read mum's story below and you'll see why I think it's so important to raise awareness about the disease and I continue to raise money for vital research (so far I have raised over £50,000 for ARUK in the last 13 years).[/p][p]This time I needed something extra special to draw attention to Alzheimer's Research UK. My last challenge saw me run 52 marathons in 52 weeks and I joined the very special 100 Marathon Club ahead of my 60th birthday. This of course has meant that I can't just say that I'm going to run a few marathons in 2018 and expect people to make donations! I've done lots of fun things at the London marathon in the past, for example knitting a scarf (4 times) and crocheting a chain (twice) to link together people with dementia, but I've also completed lots of tough trail marathons such as the Beachy Head marathon.[/p][p]So now it's getting really serious and will take me way out of my comfort zone - I'm going for a very long run. 100 miles to be exact (my tummy does a somersault when I even think about it!). I wanted it to be extra challenging and it seemed like a logical progression from my 60th birthday challenge, especially as I will still be 60 when the event takes place. I have now completed 143 marathons and although I have completed 24 ultra-marathons (which is a race over the standard marathon distance of 26.2 miles but usually considered to be anything over 27.5 miles) the furthest I have ever completed in one go is 54 miles.[/p][p]The event I've chosen takes place in March on farm tracks in East Kent and there is a 32 hour time limit which of course means that I will be running through the night in total darkness. That alone is very scary for me as I have exceedingly poor eyesight and my night vision is not great. Add to that the thought of putting one foot in front of the other for such a long time.........well, that's very scary indeed.[/p][p]But that's the whole point of a challenge isn't it! Please read 'Mum's Story' below to see why I am so passionate about pushing myself to raise funds to defeat this dreadful disease.[/p][p][b]I did it - 100 miles completed in 26 hours 52 minutes and 23 seconds, well within the 32 hour time-limit. Thank you so much to everyone who has donated so far! [/b][/p][p]You can keep up to date with my progress by checking out [url=http://www.extremeknittingredhead.blogspot.co.uk/]my blog[/url] where I write about my training amongst other things.[/p][p][br][/p][p]Mum's story:[/p][p] [/p][p]In 1997 my mother, then aged 81, had a series of minor strokes. Shortly after that we started to notice behavioural changes notably memory loss and confusion over everyday items. We thought it was just old age finally catching up with her. Then she started wandering and had violent mood swings. Although she already lived with us it became obvious that she couldn't be left alone for long and so I left my job to care for her.[/p][p] [/p][p]The next few years saw a gradual decline into the blackness that is 'vascular dementia'. My normally placid mum became violent and aggressive. She had psychotic incidents where she would see imaginary people (children hiding in her wardrobe, Russians sitting on the stairs, women stealing her clothes) and she would shout at them and sometimes throw things too. She was so convincing that we used to go and check that there wasn't anyone there! When my sister died several years ago mum did not know who Judy was or that she was her daughter. The moment that I finally realised she no longer knew that I was her daughter was a terrible time for me.In the last 2 years that she lived with us, life for us all became almost unbearable as she needed 24 hour care - she couldn't be left alone at all because she would either wander off or hurt herself, she never slept for more than 30 minutes at a time during the night, she became incontinent and incapable of doing anything for herself. Finally my husband and I realised that we could no longer provide her with the care that she needed and she went to live in a special Care Home where Harry and his team did a splendid job caring for her in the final months of her life.There she lived a zombified existence unaware of who she was, what she was or where she was. It was heartbreaking. She died in 2005, the day after her 89th birthday. I ran my first London marathon in her memory 2 weeks later.[/p][p] [/p][p]Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.[/p][p] [/p][p][br][/p]
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Share Susie's story


Personal Challenge Date

30 Apr 2019


Alzheimer's Research UK

Alzheimer's Research UK




Happy belated birthday. So sorry for the late donation. Hope you had a fabulous day. Love Karen, Mark, Sophie Chloe xxxx

£20.00 plus £5.00 Gift Aid


Collection from talk at St. James







Excess race entry fee, better here than in my pocket!



Eleanor and Pip

Well done. With love from Eleanor and Pip xxx




Amazing commitment and always so positive and cheerful. You just never give up and are an inspiration to us all.




100 miles! What more can I say? x

£50.00 plus £12.50 Gift Aid



You are incredible......




Well done Susie. You are an inspiration! Love from the Foleys xx

£20.00 plus £5.00 Gift Aid



Well done ! xx

£20.00 plus £5.00 Gift Aid