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Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]September 9th 2017 was the day our world changed forever. Our beautiful son Jacobi, who was only 4, was diagnosed with Duchenne Muscular Dystrophy (DMD). For those of you who do not know about this condition DMD is a severe muscle wasting disease caused by the lack of a protein called dystrophin. Over time, the body of a boy affected by DMD will gradually degenerate, resulting in the loss of ability to walk and the need for a wheelchair between age of 8 to 12. This cruel disease also reduces life expectancy and, at present, there is no cure. [/p][p]In the aftermath of Jacobi’s diagnosis we felt lost, alone and without hope. As a family we have now gained in strength and feel a strong need to be proactive. We want to make a difference to Jacobi’s life and to all other little boys affected by DMD and for this reason we made the decision to start fundraising. [/p][p]Our mission is to raise money to fund research and clinical trials in order to find a cure for this cruel disease. Over the last few years, significant advances have been made towards finding a cure for DMD and we along with other parents feel that there is hope on the horizon. [/p][p]Please see www.jacobiswish.com and Facebook... for upcoming events. [/p][p][br][/p]

Share Jacobi's's story

Event

Personal Challenge Date

31 Dec 2020

Supporters

Jun 5, 2019

The Westys

All the best for the Dash!

£25.00 plus £6.25 Gift Aid

May 30, 2019

Fiona-Anne

Good luck with the cycling. xx

Mar 23, 2019

Anonymous

£30.00 plus £7.50 Gift Aid

Mar 16, 2019

Heart and Hand

From Neil Heron and the Heart and Hand Podcast Patreon Community.

£250.00 plus £62.50 Gift Aid

Jun 23, 2018

Brian, Alexandra, Jessica & Calum

good luck with your fundraising

£20.00 plus £5.00 Gift Aid

Jun 21, 2018

Raymond Diane Roy

£50.00 plus £12.50 Gift Aid

May 28, 2018

Hamish and Moira Slater

Wishing you all the best with your fundraising efforts. Love & Best Wishes to you all.

£500.00 plus £125.00 Gift Aid

May 4, 2018

Anonymous

Apr 28, 2018

Victoria and Matilda Maitland

Lots of Love to Jacobi xxx

£20.00

Apr 12, 2018

Mark Andrew and Carolyn Masson x

£30.00 plus £7.50 Gift Aid