Our site needs cookies

We need cookies to help you sign in, create a fundraising page and donate. If you want to fundraise or donate on our site, you will need to turn on cookies How to turn on cookies.

It looks like you are trying to access a charity account.

Please click here for the charity sign in page. If you are not trying to access a charity account, please contact us.

Profile

krishnan guru-murthy

Duchenne dash

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]Seven years ago my friends discovered that their little boy had a disease none of us had really heard of. They were one of two families every week in the UK told that their child has Duchenne Muscular Dystrophy (DMD), a devastating muscle wasting disease that mainly affects boys.[/p][p]DMD is a desperately cruel disease. It's the most common genetic killer of children worldwide. Children will be totally paralysed by their teens and many won't live beyond their 20s. [/p][p]There is no treatment or cure. But thanks to recent breakthroughs, and with your help, we believe we can save them.[/p][p]Duchenne UK are an ambitious and highly focused charity, investing millions of pounds in research right now to bring treatments and a cure and to help this generation.[/p][p]Please help us to END DUCHENNE.[/p][p]Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to Duchenne UK. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.[/p][p]Since starting the ride 7 years ago I have been diagnosed with my own little rare condition meaning the doctors tell me I have to be quite careful with my heart rate. So I will be doing the ride on a new e-bike. You still pedal, you still hurt, you still have the endurance factor and it’s hard work. But on the hills and from stationary to rolling speed the battery means it’s easier to pedal. Once you’re over 15mph it stops working - and you’re just pedalling a heavy bike. So full disclosure it’s going to be easier for me this year to avoid keeling over, but it’s still going to be tough. [/p]

Share krishnan's story

Event

Duchenne Dash

Duchenne Dash

07 Jun 2019

Supporters

May 21, 2019

krishnan

May 21, 2019

Anonymous

£100.00 plus £25.00 Gift Aid

May 21, 2019

Anonymous

£100.00 plus £25.00 Gift Aid