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Lisa Moncrieff

Lisa Moncrieff

Mount KilimanjaROSIE Trek

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p][span=color: #000080;]For years I’ve dreamt about what it would be like to reach the summit of Mount Kilimanjaro – the highest freestanding mountain in the world. You may think I’m a seasoned trekker, a lover of the great outdoors and fit as a fiddle – but I’m really none of those things.[/span][/p][p][span=color: #000080;]Instead I am someone who is facing a situation that is testing me beyond belief. It’s a situation that is teaching me to embrace my fighting spirit, to be braver and bolder, to listen to the deep whisperings of my soul and to embrace the sense of adventure that has been buried inside me for far too long.[/span][/p][p][span=color: #000080;]My little girl [b]Rosie[/b] was born with a rare and life-limiting muscular dystrophy called [b]Nemaline Rod Myopathy[/b]. There are less than 50 people in the UK with this condition and reports show that 66% of children born with this disorder die before the age of two. [/span][/p][lt]p style="text-align: center;"[gt][span=color: #103488;][lt]img src="https://myweakmuscles.files.wordpress.com/2017/03/screen-shot-2017-03-29-at-00-50-51.png" alt="Rosie first birthday" width="500" height="287" /[gt][lt]br /[gt][/span][/p][p][span=color: #000080;]Rosie almost joined this statistic when she went into respiratory arrest days before her first birthday. It was touch and go and I never have imagined that I’d be spending my first Mother’s Day praying by her hospital bed. We are extremely lucky and incredibly blessed to have a little warrior on our hands who is constantly reassuring us that she’s not going anywhere just yet. Rosie is now three years old and an inspiration to us all.[/span][/p][p][span=color: #000080;]However every day life is far from easy for my little girl. Nemaline Rod Myopathy affects almost every muscle in Rosie’s body making ordinary tasks like eating, smiling, walking, sitting and lifting things a struggle, if not impossible. Every day she requires 24/7 care to help her breathe, move and eat. She is an intelligent little lady who is trapped inside a body that doesn’t work as nature intended, and her weak muscles constantly battle to support her growing bones.[/span][/p][p][span=color: #000080;]She’s a truly unique and special little girl and my husband Iain, and I, learn so much from her every single day.[/span][/p][lt]h3 style="text-align: center;"[gt][b][span=color: #c6628c;]Rosie is my hero and I want to be hers.[/span][/b][lt]/h3[gt][lt]p style="text-align: center;"[gt][span=color: #103488;][lt]img src="https://myweakmuscles.files.wordpress.com/2017/03/20170315_122315.jpg" alt="Superhero Rosie" width="500" height="375" /[gt][/span][/p][p][span=color: #000080;]So finally, after years of thinking, talking and doing nothing about it, I have decided to go for it. I am officially signed up to trek Mount Kilimanjaro this September – one of the most physically and mentally demanding charity events out there.[/span][/p][p][span=color: #000080;]Reaching the summit of Mount Kilimanjaro was on my radar long before Rosie was born, but I honestly never knew [i]why[/i] I really wanted to do it, I just believed that one day I would. As I think about the challenge now, in the context of my life, it’s hard not to find far more meaning to it:[/span][/p][ul][li][span=color: #000080;]I can only imagine how it feels at the end of a long and exhausting day trekking uphill, and this is how Rosie feels at the end of a normal day.[/span][/li][/ul][ul][li][span=color: #000080;]When we hit altitude, I imagine the struggle for breath is as real as it is for Rosie when she catches a common cold – something so trivial and yet which can cause her lungs to part-collapse, or worse. This challenge will give me a better understanding of what breathing feels like for Rosie in these circumstances. The only difference is that I’ll endure it for just 11 days; for her it’s a lifetime.[/span][/li][/ul][ul][li][span=color: #000080;]I also want to show Rosie that it is possible to achieve your dreams when you set your mind to something and try your best. I want to inspire Rosie to be brave and not fearful and I want to encourage her to reach for the stars and never see her physical limitations as a reason not to. The sky really is the limit (or in my case 19,341 ft. to be exact!).[/span][/li][/ul][lt]p style="text-align: center;"[gt][span=color: #103488;][lt]img title="Photo credit: www.globaladventurechallenges.com" src="https://myweakmuscles.files.wordpress.com/2017/03/screen-shot-2017-03-25-at-12-30-44.png" alt="Kilimanjaro" width="500" height="176" /[gt][lt]br /[gt][/span][/p][p][span=color: #000080;]Ultimately, when the going gets tough and every step feels like I’m weighted with lead, the blisters forming on top of burst blisters feel like needles stabbing into my toes and feet, and my lungs burn with each and every breath, the thought of my little lady will get me through. I know I’ll hear her sweet voice inside my head saying: [b]“Go on mummy. If I can make it this far, then you can too.”[/b][/span][/p][lt]h3 style="text-align: center;"[gt][b][span=color: #c6628c;]A mighty challenge for a special charity[/span][/b][lt]/h3[gt][p][span=color: #000080;]Of course the main reason why I want to take on this mighty challenge is to help raise a whopping amount of money for a special charity – [b]Muscular Dystrophy UK[/b].[/span][/p][p][span=color: #000080;]Muscular Dystrophy UK is a charity dedicated to finding cures and treatment for those with muscular dystrophy and is actively researching Rosie’s condition. There is currently no cure for Nemaline Rod Myopathy, but with a kind donation, you can help us get that little bit closer to finding one.[/span][/p][p][span=color: #000080;]Any donation big or small to show your support is a HUGE step forward and 100% appreciated. I really hope you can find it in your heart and wallet to dig deep and support us.[/span][/p][p][span=color: #000080;]Thank you x x x[/span][/p][lt]h2 style="text-align: center;"[gt][b][span=color: #000080;]#Kilimanja[/span][span=color: #c6628c;]ROSIE[/span][/b][lt]/h2[gt][lt]p style="text-align: center;"[gt][span=color: #103488;][i][lt]img src="https://myweakmuscles.files.wordpress.com/2016/11/dsc_1341.jpg" alt="My Rosie hearts" width="500" height="281" /[gt][/i][/span][/p][p][span=color: #000080;][b]Please note:[/b] I am personally funding every aspect of my trip and ALL money fundraised will go directly to Muscular Dystrophy UK.[/span][/p][p][span=color: #000080;]Follow Rosie's journey at:[b][lt]span style="color: #c6628c;"[gt] www.myweakmuscles.com[/span][/b][lt]/span[gt][/p][p][span=color: #0c02a0;][lt]span style="color: #000080;"[gt]Find out more about Rosie's Charity Ball fundraiser on Friday 16th June 2017 at Clevedon Hall:[b][lt]span style="color: #c6628c;"[gt] www.rosiescharityball.co.uk[/span][/b][lt]/span[gt][lt]/span[gt][/p]

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Event

Personal Challenge Date

21 Sep 2017

Supporters


Oct 24, 2017

Sue Allen

Well done to Lisa and Iain and all the Moncrieff family. Your support and devotion to Rosie is incredible. Onwards and upwards. Sue x

£50.00

plus £12.50 Gift Aid


Oct 22, 2017

Linda Preston

Well done Lisa in your Trek for Rosie you are an amazing young lady. Both yourself and Iain strong, wonderful caring parents xx

£30.00

plus £7.50 Gift Aid


Oct 17, 2017

Paul

Lisa, you are an inspiration. Congratulations on an amazing achievement. What incredible parents you both are. Rosie must be so proud of you both. Paul, amplifier.

£50.00

plus £12.50 Gift Aid


Oct 11, 2017

George

Well done Lisa - and many many congratulations on your fantastic achievement!

£50.00

plus £12.50 Gift Aid


Oct 11, 2017

Gillian

Congratulations Lisa!

£25.00

plus £6.25 Gift Aid


Oct 9, 2017

Jo

Amazing mommy and friend Rosie will be so proud

£15.00


Oct 5, 2017

Laura and Jon

Such a fantastic achievement!! Lots of love Laura, Jon, Lydia and Noah xxxx

£30.00

plus £7.50 Gift Aid


Oct 3, 2017

David and Lyn Irving

Congratulations on a great achievement

£25.00

plus £6.25 Gift Aid


Oct 2, 2017

Linda Lowe

Well done Lisa, a great experience and a wonderful achievement.

£50.00

plus £12.50 Gift Aid


Oct 1, 2017

Sam Osborne Crossfit OzBox

We held a fundraiser fitness competition at our Crossfit Gym to raise money for this worthy cause. Hope it helps.

£348.00

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