Emma Elbourne

Emma Elbourne

Emma Elbourne's London Marathon 2014 Page

Supporting

Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

My story

[p]I have been inspired by my one-year-old twins Ava and Louie to run the London Marathon in April to raise vital funds for the disability charity Scope.[/p][p] Ava and Louie were born nine weeks prematurely.  At birth they weighed just 4lb 1oz and 4lbs and spent 29 days in the neonatal unit at Hull Royal Infirmary receiving specialist care.  Louie, the smaller of the two spent more time in Intensive Care and the High Dependency Unit and had to be put on a machine known as CPAP to assist Louie with his breathing but after 2 weeks joined his sister in the Special Care Room.[/p][p]It was the most traumatic time I have ever experienced, going into Labour so early, not been able to hold your babies and seeing them all wired up in Incubators, it was horrific.  I couldn’t go into Louie’s Room when he spent time in the High Dependency Unit in a morning without my husband going in first, I was so frightened and we didn’t get to see Louie’s face for a week due to him having to wear a mask to help him breathe.  When my husband left the hospital on a night when I was still admitted on the maternity ward I would cry all night, I didn’t have my babies in my arms.  I still get flashbacks now.[/p][p]9 days before Ava and Louie were discharged from hospital my husband and I received the devastating news from the neo natal paediatrician, that routine ultrasound scans had revealed that both Ava and Louie had developed cysts in their brains, which most likely was caused by the premature birth. This was then diagnosed as Periventricular leukomalacia or PVL (a form of white matter brain injury). The doctor told them that this would most likely lead to cerebral palsy, a condition which affects co-ordination and movement and is caused by damage to the brain.  The severity of which would not be known until later on but Louie’s injury was more extensive than Ava’s. Worst case scenario the Twins would be wheel chair users and have very complex needs.[/p][p] The shock of the diagnosis was difficult to accept, our babies seemed to be doing really well in hospital and the news felt like being hit by a bus. I can’t remember getting home that night and my husband had to call for an emergency doctor as I had several anxiety attacks. What made things so difficult was the fact that Ava and Louie were still in hospital so we didn’t have them for comfort.”[/p][p] It sounds terrible, but there was definitely a period of grieving for the life that we were expecting with our first children, and without the support of our amazing family and friends I really don’t think we would have got through it.  We would wake up in a morning praying we had experienced the most horrific nightmare but it was real.”[/p][p] The good news is that we do not have the worst case scenario and Ava and Louie are now doing well and we have settled into family life. Louie’s condition affects all four limbs and Ava’s lower limbs only are affected. However, these are rapidly improving with the help of regular physiotherapy sessions, and also have ongoing support from Occupational Therapy as well as the community paediatrician.[/p][p] Our consultant at the hospital is really pleased with how they are both progressing and Ava and Louie are giving us the answers, positive ones, on what the future holds, we have never experienced happiness like it, they are wonderful and although they have obstacles in their paths they are two determined little people.[/p][p] We still struggle and there are times we really have to fight with the black cloud that’s overshadowing all our lives, the uncertainty is hard to manage at times.  Louie unfortunately also had an epileptic fit just before Christmas, at the time we weren’t sure what it was and it was so frightening seeing our child in this way.  We had been told due to their diagnosis they could develop epilepsy in which Louie unfortunately has.  Ava is also been fitted with splints to wear on her lower legs to help her movement in her lower limbs”.[/p][p] But we are more positive now, and milestones in their development mean so much to us.  Ava is now sitting up and rolling over, and Louie has just started to roll and his sitting is improving.  We celebrate all their achievements, although small to others, is unbelievable achievements for us and we are so very proud of them.[/p][p]Although we still have to an uncertain future to some extent, we are blessed each and every day with Ava and Louie, they are our beautiful children and each and every day they make us so happy, they truly rock our worlds and the love we have for them is just indescribable. [/p][p] I am running my first marathon for my two beautiful children Ava and Louie and this fantastic charity Scope, which together with our fantastic support from our family and friends has made Phil and I not dread the future, nor the words Cerebral Palsy.”[/p]

Supporters


Apr 28, 2014

Anonymous

Well done Emma fantastic achievement

£10.00

plus £2.50 Gift Aid


Apr 26, 2014

Anonymous

Well Done Emma fantastic effort and excellent amount raised.

£20.00

plus £5.00 Gift Aid


Apr 18, 2014

Harrison and Megan

50p a mile off both of us love you lots

£26.00

plus £6.50 Gift Aid


Apr 13, 2014

Anonymous

Well done Emma, amazing story, great cause. Best wishes,

£50.00

plus £12.50 Gift Aid


Apr 13, 2014

Becky & Steve Price

Well done Emma, you can relax now & drink lots of bubbly!

£20.00

plus £5.00 Gift Aid


Apr 12, 2014

Simon & Madison

Enjoy the experience tomorrow Emma! You're a warrior and a massive inspiration xx

£20.00

plus £5.00 Gift Aid


Apr 12, 2014

Catherine & Jonny Brown

Emma you are amazing! Hopefully see you tomorrow afterwards for big hugs xx

£20.00

plus £5.00 Gift Aid


Apr 12, 2014

Anonymous

Good luck Emma - enjoy the experience. We'll be looking out for you.

£25.00

plus £6.25 Gift Aid


Apr 12, 2014

Anonymous

Good luck Emma, we will be thinking of you tomorrow. xx

£20.00

plus £5.00 Gift Aid


Apr 11, 2014

The Smiths

Those long hard training runs will pay off now Emma. Have a fantastic weekend, enjoy the atmosphere and keep some in the locker for mile 20 onwards! Lots of love from Andy, Michelle, Harrison, Noah and Benjamin xxxxx

£25.00

plus £6.25 Gift Aid

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