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Profile

Mark Thornberry

Running the odd mile...to help beat cancer

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p](Update February 2020).[/p][p]I have Stage IV hepatocellular carcinoma (HCC) - or primary liver cancer, that has subsequently metastasised (spread) outside of the liver.[/p][p]My cancer was first diagnosed at the end of April 2017. Following a ‘failed’ procedure, two months later I was told it was terminal and given 6 to 9 months to live.[/p][p]Following 4 other procedures, I underwent major surgery to remove more than 50% of my liver. A procedure that had hitherto not been possible to prescribe given the disposition of my cancer and the complication of having underlying cirrhosis. [/p][p]However, my tumour biology means that I am susceptible to recurrence, and at the beginning of May 2019 scans revealed secondary cancer outside of the liver. [/p][p]Since then, I have been on a couple of systemic drug treatments, that unfortunately have not stopped the growth of the disease. I have been told that my tumour burden is such that is inoperable.[/p][p]As I write this update I am hoping to meet the eligibility criteria for a very early stage Clinical Trial.[/p][p]After fighting the disease for the best part of three years, my future more than ever, feels very binary in the near term...but no matter what prognosis lies immediately ahead, I am firmly resolved to uphold what I said after my initial diagnosis - I refuse, absolutely refuse, to go quietly into the night. I’m still jabbing away though the Clinicians have been unsure as to why. This is the nature of liver cancer in many, many cases.[/p][p]I’ve used my passion for ultrarunning as a means to keep raising funds for research into HCC at King's College Hospital (KCH) in London - who had been caring for me as an outpatient for for my liver disease and who are now providing support and treatment for my cancer. [/p][p]I was fortunate to talk about it on Sky News in May, 2018.[/p][vmgvideo class="ql-video" frameborder="0" allowfullscreen="true" src="https://www.youtube.com/embed/_aHRpRbTDf4?showinfo=0&rel=0&iv_load_policy=3"][/vmgvideo][p][br][/p][p][br][/p][p][br][/p][p][br][/p][p] Your help with fundraising is crucial. I'm just not accepting of the fact that liver cancer is currently only curable by transplant (and the vast majority of us are either detected too late for that or are qualified out by other criteria). The monies raised via this page have been deployed to enable research into the 'mechanics' of liver cancer, to further understand disease progression...and ultimately to help target more precise treatment pathways for patients...and that is just so uplifting. I blogged about this deployment here: [/p][p][url=https://thorners.wordpress.com/2019/01/29/show-me-the-money/]https://thorners.wordpress.com/2019/01/29/show-me-the-money/[/url][/p][p]This is just a start.[/p][p]By way of background...KCH is a leading NHS hospital and home to the well renowned Institute of Liver Studies...and it is brilliant. Everyone I've met there, from porter to nursing support to Consultant have been off the chart with their dedication to patient care. [/p][p]They all know that liver cancer patients have very poor prognosis. [/p][p]Having spent some time as a patient on the wards there, you just sense how much more the team want to do to fix you completely or to get you more time.[/p][p]But in the majority of cases they can't...the treatment options for liver cancer patients are very limited, the research £s are just not there for ‘less survivable cancers’ and I get the sense that NHS funding for critical illness is still massively triaged, let alone is it enough in relative terms. The big Pharma companies have their own agendas and preferred target markets.[/p][p]So, I'm going to do my bit to help KCH (Charity Fund), and thus am asking for your support. I've had tremendous support to date as I've taken on a number of races...ranging from running 100 miles continuously in the Sonoran desert in Arizona to 145 miles down the Grand Union Canal (from Birmingham to Paddington) to 100 miles in the forests of the Brabant in Belgium. However, I may not have run an ultramarathon for 15 months but my fellow runners have been outstanding in keeping the Charity front and centre. [/p][p]I find myself once again at the edge of that precipice...but am now even more determined to raise further funds to help beat this complex cancer.[/p][p]May I thank you for any and all support,[/p][p]Mark[/p][p]PS - if eligible, please don't forget to check the Gift Aid box![/p][p]email: mark@thornberry.co.uk[/p][p]twitter: @thorners125[/p][p]blog: https://thorners.wordpress.com[/p]
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Event

Personal Challenge Date

28 Dec 2019

Supporters

Aug 1, 2020

Viki Smith

Small donation in exchange for an Ultra Tshirt, think Mark would have liked that. Good luck all the T24 virtual runners x

£10.00 plus £2.50 Gift Aid

Jul 31, 2020

Sue Youds

£15.00 plus £3.75 Gift Aid

Jul 16, 2020

Tibco Software

Mark was a much loved colleague within the TIBCO family and was an inspiration in working so hard for such a worthwhile cause. Our thoughts are with Mark�s family, friends and community

£10000.00

Jul 11, 2020

Anonymous

£165.00

Jul 10, 2020

Anonymous

Just read about Mark’s story and was moved to donate. May he really in eternal peace 🙏🏾

Jul 6, 2020

Anonymous

RIP Mark...JB

Jul 6, 2020

DB

To the Thornberry family; we are humbled and inspired by Mark's determination and efforts throughout what must have been such a difficult time for you all. We hope this donation will help you reach the ultimate target even faster. All of our love, x

Jul 1, 2020

mawds

£30.00 plus £7.50 Gift Aid

Jul 1, 2020

David Hall

A rare and real gentleman, a pleasure to have known and worked with you. RIP Mark.

£100.00 plus £25.00 Gift Aid

Jul 1, 2020

Graham Carter aka GC

Oh Captain, My Captain. God speed Team Leader. Rest in peace Thorners. Your legacy lives on. You certainly paid it forward in style. Big love to the Thornberry family x

£40.00 plus £10.00 Gift Aid