Purl Design Architecture

Purl Design Architecture

Walking 1 step at a time - 1748 miles by Dec


Total raised so far£0.00

Total plus Gift Aid: £0.00


Raised offline: £0.00

My story

[p]Thanks for visiting our page.[/p][p]After a difficult few years and much fundraising we weren’t going to do it again as chronic illness takes it toll...until a friend (Paul -you know who you are! suggested it!) Michelle and I feel we still need to raise awareness for at least two, much overlooked and misunderstood conditions....To do this we are walking one step at a time via race at your pace logging our miles from Lands End to John O Groats and back’ using the recognised route of 1748 miles this started Jan 1st and will be (he says hopefully) completed on 31st December! With a medal with the miles on to prove it at the end!![/p][p]Our first charity is [b]Thrombosis UK. [/b]Every 6 seconds a person dies from a VTE globally. Its what people call the silent killer and much more research and awareness amongst the medical profession is needed.[/p][p]November 2015, we nearly lost Michelle. She suffered multiple pulmonary embolisms on both lungs and was sent home from hospital on a weekend, as they misdiagnosed her. I returned her to A&E first thing Monday morning after her breathing became dangerously shallow and painful, she was at this point very poorly but a CT scan was denied. It was after being sent home again Monday evening things became quite apparent Michelle was in big trouble. She was rushed back to hospital Tuesday where she collapsed and a CT scan was ordered and multiple pulmonary embolisms in both lungs were found. It was at this moment our world as we know it changed forever. Michelle was one of the lucky ones to survive, but it is a long road to recovery, we are told she will never recover fully physically or mentally, but we continue to work towards a place of stability and being able to manage the fall out of such an event. This is still work in progress![/p][p]We feel the reason they missed this is that Michelle was fit, active, ex military, young (ish!) she hadn’t endured recent operation, or long flight, and in fact she never sits still! So none of the usual boxes were ticked, but she struggled to breath and she was in severe pain on breathing in and eventually collapsed and lucky to be here at all. Michelle had an unprovoked series of pulmonary embolisms, which nearly claimed her life. She went from ok to coming out of hospital and not being able to walk up the stairs or across the kitchen. It was the start of a long recovery, which we are still in the process of. Initially she couldn’t drive, walk, read and her cognitive function was virtually non-existent. Although she is driving now and always smiling! Her full cognitive function is still very much work in progress![/p][p]We were unaware of the complexities and the seriousness of this condition, in fact we were unaware of this condition at all and knew nothing about it, nowon blood thinners for life due to the unprovoked Pulmonary Embolisms and has AFib (heart), which has had some initial teething problems, and an emergency blood transfusion! We need to raise awareness so health professionals and the people recognise the symptoms quickly as the quicker you act may just save a life...[b]It can happen to ANYONE from young, athletes to the elderly.[/b][/p][p]Michelle has also recently been diagnosed with M.E(Myalgic Encephalomyelitis), hence the second charity [b]Action for M.E. [/b] Which is a long term neurological condition that affects an estimated 250,000 people in Britain... It is a complex and extremely debilitating illness.[/p][p]We are currently navigating our way around a new way of living trying everything possible to make this new tricky lifestyle work! What has surprised us and not in a good way is the complete ignorance about the condition and the judging onlookers which needs addressing and just how difficult it is to live with not knowing often from sometimes one hour to the next how her body will react and cope. Michelle reckons there is always a way around everything! (can be a worry sometimes! And she has more than a few times ended up in some sort of crisis or me on a rescue mission!). We have thanked our lucky stars at least twice for letting us keep Michelle with us, we would really appreciate your support in helping us raise as much as we can for Thrombosis UK and Action M.E so they can continue their vital work. [/p][p]We thank you from the bottom of our hearts, your support gives us courage to continue. [/p]


Personal Challenge Date

31 Dec 2019


Nov 22, 2019

William Molesworth-St Aubyn

What an amazing story


plus £7.50 Gift Aid

Oct 3, 2019

Jessica Hopkins

What a fantastic achievement! Well done and huge congratulations to you both x


plus £2.50 Gift Aid

Sep 23, 2019

Rachel and Nevil

Good luck to both of you, well done on taking those all important steps! xx


Sep 22, 2019

Sharon Burrows

You are truly amazing. Good luck Michelle and Pete xx


plus £3.75 Gift Aid

Sep 11, 2019

Alan & Lesley Dibb

Good luck with this initiative. What a scary story.


plus £3.75 Gift Aid

Sep 2, 2019

John and Maxine Samuels

An inspirational story! Please keep going.joh


plus £12.50 Gift Aid

Aug 14, 2019

David Mills

Peter and Michelle Best of luck in your new fundraising for two great Charities David and Caroline


plus £25.00 Gift Aid

Aug 1, 2019

Bob and Julie


plus £12.50 Gift Aid

Jul 19, 2019

Coastal Construction

well done guys! so easy to say that we 'should do something' rather than 'do something'!


plus £5.00 Gift Aid

Jul 12, 2019

Peter Bland

Good luck.


plus £25.00 Gift Aid

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