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Profile

Richard Binns

Duchenne Dash 2020 Backing Jack

Total raised so far £0.00

Target £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

My story

[p]In November of last year, my 4-year-old son Jack was diagnosed with Duchenne Muscular Dystrophy (DMD). This is a very rare and desperately cruel terminal muscle wasting disease which currently has no cure with an estimated 300,000 sufferers worldwide.[/p][p]The history of this disease, which mainly effects boys would see Jack being paralysed and needing a wheelchair from the age of 12 and a life expectancy between 20 and 30 due to cardiac complications that come on as he gets older (due to the heart being a muscle). [/p][p]There is hope however thanks to recent medical breakthroughs. Right now, there are a number of clinical trials ongoing around the UK and more planned for the future to help Duchenne sufferers. These cover a wide range of treatments from Gene Therapy to Exon Skipping and even synthetic forms of steroids to help slow the muscle wastage. The hope is that these clinical trials will yield results that can alter the history of this disease and change the outlook for children like Jack suffering with this condition.[/p][p]To try and help the fundraising cause toward research and the development of these treatments, I along with 3 friends, Tom, Nathan and Johnny have signed up to do the Duchenne Dash. [/p][p]The Duchenne Dash is a gruelling 24-hour bike ride from London to Paris to help children with DMD. We start in London on the 12th June and arrive triumphant, a day later, under the Eiffel Tower (which just happens to be my Birthday!)[/p][p]Two families a week in the UK are told that their child has Duchenne Muscular Dystrophy, it is the most common genetic killer of children worldwide.[/p][p]Duchenne UK are an ambitious and highly focused charity, investing millions of pounds in research right now to bring treatments and a cure to help this generation.[/p][p]Please help us to END DUCHENNE.[/p][p]Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to Duchenne UK. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.[/p]
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Share Richard's story

Event

Duchenne Dash 2020

Duchenne Dash 2020

12 Jun 2020

Supporters

Feb 24, 2020

Anonymous

Good luck JH and all the gang on your journey

£20.00 plus £5.00 Gift Aid

Feb 24, 2020

Anonymous

Feb 23, 2020

Alma

Pob hwyl Jonathan a phawb ar y daith.

£20.00

Feb 23, 2020

Jamie

Wishing you and your friends a safe journey. A great effort for a very worthy cause. Go Team Jack!

£20.00 plus £5.00 Gift Aid

Feb 22, 2020

Claudia Dixon

£20.00 plus £5.00 Gift Aid

Feb 21, 2020

Anonymous

£5.00 plus £1.25 Gift Aid

Feb 18, 2020

Sophie

Good luck x

£20.00 plus £5.00 Gift Aid

Feb 18, 2020

Max Jewell

£10.00 plus £2.50 Gift Aid

Feb 18, 2020

Anonymous

£5.00 plus £1.25 Gift Aid

Feb 16, 2020

Amelia

£10.00