For Elliot's Endeavours

For Elliot's Endeavours

15 fundraisers


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Total raised so far£0.00

Total plus Gift Aid: £0.00


Raised offline: £0.00


[p]Elliot has been diagnosed with Duchenne Muscular Dystrophy.[/p][p]Duchenne is a rare genetic disorder that primarily affects boys. It means that the body is unable to produce Dystrophin, a protein vital for muscle growth. Without dystrophin, muscles wastes away and are unable to regenerate. [/p][p]Between the age of 8-12, boys with Duchenne will lose the ability to walk. By their late teens they will be paralysed from the neck down; and eventually the muscles around their lungs and heart will cease to function, resulting in life expectancy to be in the early 20’s. [/p][p]As it stands today, Duchenne is 100% fatal and currently has no cure. [/p][p]As a parent, there is nothing on this earth more frightening than hearing that your child has a life limiting condition and there is nothing anyone can do about it. Having to watch my son lose his strength little by little is going to be the biggest challenge we will ever have to face in our lifetime. This doesn’t just affect us as parents, but it devastates an entire family network. [/p][p]But amongst this heartache and challenges, there is some optimism for the first time in the Duchenne community. Currently around the world there is an army of scientists that are working to treat the condition. There are a number of clinical trials in progress, tackling different aspects of the disease which will not only increase life expectancy but also has the potential to completely transform the quality of life for boys with Duchenne.[/p][p]However, there is a pressing issue of time in getting these treatments widely available on the NHS. Clinical trials can take up to 20 years from start to finish, and although some trials are in the later stages, there is still a number of years before they become readily available to the Duchenne community. [/p][p]Duchenne UK are a charity who are pushing the boundaries for medical research and care for the Duchenne community by accelerating the timeline to get these treatments to market. Every penny that is raised for Duchenne UK goes back into the clinical research to ensure that treatments become widely accessible to the Duchenne community. [/p][p]We are in a race against time and we need your help! There are 2500 families whose hearts and lives have been shattered by this terrible disease. Please help us find a cure by raising money for Duchenne UK and help us save our sons lives![/p]
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Jul 30, 2021

Steve and Mandy

Our thoughts are with all your lovely family. Life is so cruel at times, you are all very brave. Stay strong xx


plus £5.00 Gift Aid

Jul 23, 2021


From sobw of the lads at Tata Jack, Tony , Jon

Jul 22, 2021

Julie Meridith


plus £25.00 Gift Aid

Jul 22, 2021

Annmarie & Rikki


Jul 16, 2021


Well done everyone you are all amazing 👏 keep going for Elliot


plus £12.50 Gift Aid

Jul 13, 2021

Tata Auto Bonus Ball.


plus £15.78 Gift Aid

Jul 9, 2021

Julie and friends


Jul 4, 2021


Only a small donation. You are all incredible. Love millie and Alex xxx


plus £1.25 Gift Aid

Jul 3, 2021

Natalie Black


plus £2.50 Gift Aid

Jul 3, 2021

Paul Rapley


plus £25.00 Gift Aid

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