For Elliot's Endeavours

For Elliot's Endeavours

15 fundraisers

Supporting

https://uk.virginmoneygiving.com/SomeoneSpecial/

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Total raised so far£0.00

Total plus Gift Aid: £0.00

Target£0.00

Raised offline: £0.00

Story

[p]Elliot has been diagnosed with Duchenne Muscular Dystrophy.[/p][p]Duchenne is a rare genetic disorder that primarily affects boys. It means that the body is unable to produce Dystrophin, a protein vital for muscle growth. Without dystrophin, muscles wastes away and are unable to regenerate. [/p][p]Between the age of 8-12, boys with Duchenne will lose the ability to walk. By their late teens they will be paralysed from the neck down; and eventually the muscles around their lungs and heart will cease to function, resulting in life expectancy to be in the early 20’s. [/p][p]As it stands today, Duchenne is 100% fatal and currently has no cure. [/p][p]As a parent, there is nothing on this earth more frightening than hearing that your child has a life limiting condition and there is nothing anyone can do about it. Having to watch my son lose his strength little by little is going to be the biggest challenge we will ever have to face in our lifetime. This doesn’t just affect us as parents, but it devastates an entire family network. [/p][p]But amongst this heartache and challenges, there is some optimism for the first time in the Duchenne community. Currently around the world there is an army of scientists that are working to treat the condition. There are a number of clinical trials in progress, tackling different aspects of the disease which will not only increase life expectancy but also has the potential to completely transform the quality of life for boys with Duchenne.[/p][p]However, there is a pressing issue of time in getting these treatments widely available on the NHS. Clinical trials can take up to 20 years from start to finish, and although some trials are in the later stages, there is still a number of years before they become readily available to the Duchenne community. [/p][p]Duchenne UK are a charity who are pushing the boundaries for medical research and care for the Duchenne community by accelerating the timeline to get these treatments to market. Every penny that is raised for Duchenne UK goes back into the clinical research to ensure that treatments become widely accessible to the Duchenne community. [/p][p]We are in a race against time and we need your help! There are 2500 families whose hearts and lives have been shattered by this terrible disease. Please help us find a cure by raising money for Duchenne UK and help us save our sons lives![/p]
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Charity

Supporters


Sep 13, 2021

Wales 1 fundraiser

£282.30

plus £70.58 Gift Aid


Sep 10, 2021

The Conveyancing Foundation

Nikki Fuller and the team at Convey Law would like to send their love and support to brave Elliot and his family. We hope this donation will contribute to the incredible work being undertaken at Duchenne.

£3000.00


Sep 7, 2021

Shannon Bradbury

Thinking of you all and sending lots of love & support Xx

£15.00


Sep 7, 2021

Samantha McAllister

Stay strong Elliot, you are amazing and you will achieve wondrous things 🥰 Stephanie really likes your company


Sep 7, 2021

Katherine Armstrong

£15.00

plus £3.75 Gift Aid


Sep 7, 2021

Lynette Salt

Sending Elliot and his family lots of love. From Brandon & Lynette xxx

£10.00

plus £2.50 Gift Aid


Jul 30, 2021

Steve and Mandy

Our thoughts are with all your lovely family. Life is so cruel at times, you are all very brave. Stay strong xx

£20.00

plus £5.00 Gift Aid


Jul 23, 2021

Anonymous

From sobw of the lads at Tata Jack, Tony , Jon


Jul 22, 2021

Julie Meridith

£100.00

plus £25.00 Gift Aid


Jul 22, 2021

Annmarie & Rikki

£50.00

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