Our site needs cookies

We need cookies to help you sign in, create a fundraising page and donate. If you want to fundraise or donate on our site, you will need to turn on cookies How to turn on cookies.

It looks like you are trying to access a charity account.

Please click here for the charity sign in page. If you are not trying to access a charity account, please contact us.

Profile

Project GO

39 fundraisers

https://uk.virginmoneygiving.com/SomeoneSpecial/

Your page address can only contain letters a‑z, numbers 0‑9, hyphens and underscores.

Check address

Your page address must have a minimum of 3 and maximum of 45 characters and can only contain letters a-z, numbers 0-9, hyphens, full stops and underscores

Your chosen address is available

Remember, as soon as you save these changes your existing page address will no longer work.

Sorry, this address is already in use

Please try a different address or choose one from the list of available addresses below.

Total raised so far £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Story

[p]On the 18 July 2017 we received the heartbreaking news that both of our sons, Owen (then 3 years old) and George (9 months), have Duchenne Muscular Dystrophy.[/p][p]Kirsty had raised concerns more than a year previously, when Owen hadn’t walked until he was 21 months old. However, having been assessed by a physiotherapist and discharged, we were reassured. As the months passed, it became clear that there was a big difference between Owen and his peers with regards to running, jumping, and climbing, and we asked to be referred back to physiotherapy. It was then that Owen was referred to a Paediatrician and blood tests were arranged which confirmed that he had Duchenne muscular dystrophy. At the first appointment with the Neurologist a simple blood test then confirmed that his younger brother George was also affected.[/p][p]We are devastated that both of our gorgeous boys have this terrible disease, and it is sometimes hard to believe that our beautiful, happy, funny, naughty little men have been given such a rough start to their lives. However, we are inspired by the words of Desmond Tutu: “hope is being able to see that there is light despite all of the darkness”. Even as recently as ten years ago the future was utterly bleak for boys like Owen and George. However, with the rapid advances in medical science and breakthroughs in gene therapy, for the first time there is real hope of finally finding a cure for Duchenne.[/p][p]We are determined to make a difference for our sons and all families affected by Duchenne. We launched Project GO with the aims of raising awareness and vital funds to support research into a cure. With the generosity of so many of our friends and family we have raised over £60,000 in under 9 months, which is just the beginning. We are delighted to join Duchenne UK as a Family Fund and we are particularly passionate about supporting the development of the DMD Hub to expand clinical trial capacity for boys throughout the UK.[/p]

Share their story

Link your personal fundraising challenge

Create or link your personal fundraising challenge to see the total being raised for your loved one.

Charity

Supporters

Jun 23, 2020

Ninja Kiwi

£50.00

Jun 13, 2020

S Grant

Virtual Dash 50k ✅

£50.00 plus £12.50 Gift Aid

May 18, 2020

Anonymous

£50.00 plus £12.50 Gift Aid

Apr 28, 2020

Ed Bradnock

Challenge 2.6 donation

£30.00 plus £7.50 Gift Aid

Apr 27, 2020

Ed Bradnock

On behalf of Tim and Rach!

£50.00 plus £12.50 Gift Aid

Apr 26, 2020

Susie Paddy Hec and Mimi

IronFam for our 2.6 challenge - between the four of us we walked a marathon, cycled a marathon and did a gruelling swim marathon (26 minutes in the bath) xxx

£26.26 plus £6.57 Gift Aid

Apr 16, 2020

Bern and Chrissie

£50.00 plus £12.50 Gift Aid

Apr 12, 2020

Linda McDougall

£100.00

Feb 14, 2020

Balgay Bowling Club Country Dancing Group

£100.00

Feb 7, 2020

Marion and Syd Brand

I have made this donation in lieu of a 60th birthday gift for my friend Liz. Happy 60th Liz.

£30.00

Michael and Fiona Parkinson Campbell

running the Great Scottish Run Link opens in a new window/tab

£838.50