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Project GO

35 fundraisers

https://uk.virginmoneygiving.com/SomeoneSpecial/

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Total raised so far £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Story

[p]On the 18 July 2017 we received the heartbreaking news that both of our sons, Owen (then 3 years old) and George (9 months), have Duchenne Muscular Dystrophy.[/p][p]Kirsty had raised concerns more than a year previously, when Owen hadn’t walked until he was 21 months old. However, having been assessed by a physiotherapist and discharged, we were reassured. As the months passed, it became clear that there was a big difference between Owen and his peers with regards to running, jumping, and climbing, and we asked to be referred back to physiotherapy. It was then that Owen was referred to a Paediatrician and blood tests were arranged which confirmed that he had Duchenne muscular dystrophy. At the first appointment with the Neurologist a simple blood test then confirmed that his younger brother George was also affected.[/p][p]We are devastated that both of our gorgeous boys have this terrible disease, and it is sometimes hard to believe that our beautiful, happy, funny, naughty little men have been given such a rough start to their lives. However, we are inspired by the words of Desmond Tutu: “hope is being able to see that there is light despite all of the darkness”. Even as recently as ten years ago the future was utterly bleak for boys like Owen and George. However, with the rapid advances in medical science and breakthroughs in gene therapy, for the first time there is real hope of finally finding a cure for Duchenne.[/p][p]We are determined to make a difference for our sons and all families affected by Duchenne. We launched Project GO with the aims of raising awareness and vital funds to support research into a cure. With the generosity of so many of our friends and family we have raised over £60,000 in under 9 months, which is just the beginning. We are delighted to join Duchenne UK as a Family Fund and we are particularly passionate about supporting the development of the DMD Hub to expand clinical trial capacity for boys throughout the UK.[/p]

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Charity

Supporters

Jul 7, 2019

Lauren

Sorry I couldn’t help with the bake sale xxx

£15.00 plus £3.75 Gift Aid

Jul 1, 2019

Chris Ohly

Donations for members of the Rotary Club of Falmouth

£30.00

Jun 9, 2019

Helen Usher

Looks like it was a great event in Glasgow yesterday- was so sorry I missed it. Looking forward to supporting at another event soon. Hxx

£30.00 plus £7.50 Gift Aid

Jun 8, 2019

Marion Cannon

Just a little bit to help things along

Jun 3, 2019

Anonymous

£150.00

May 30, 2019

Simon Ring Pole Star Global

Well done all

£100.00

May 20, 2019

Nathalie Vianello a friend of Brian Lewis

May 20, 2019

David Cochrane

Many thanks to Brian Lewis for hosting a fabulous golf day at Bossey to raise awareness and to contribute to the good work of Duchenne UK. Best wishes to Owen and George as you continue on your journey.

£200.00

May 19, 2019

Sean Pike

Thank Brian for the golf day and would love to take part next year to help raise funds for this cause. My wife, Amanda, and I both wish you and the boys all luck for the future. Kindest regards Sean

£100.00

May 16, 2019

Nicolas Rancic

£200.00