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Lucy's ES Research Trust

https://uk.virginmoneygiving.com/SomeoneSpecial/

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Total raised so far £0.00

Total plus Gift Aid: £0.00

Raised offline: £0.00

Story

[div=color: #454545; font-family: UICTFontTextStyleBody; font-size: 17px; text-decoration: -webkit-letterpress;][lt]p style="margin: 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: large;][sup]We have decided to team up with The Ewing's Sarcoma Research Trust (Reg No: 1145849) This non profit organisation is doing amazing work on finding a cure for this rare and terrible disease that affects children and young adults. It is imperative that more work is done to improve the help available on top of the chemotherapy and radiation currently offered. So, please help us to raise funds to help the work of Ewings Sarcoma Research Trust, in a bid to ensure that others do not need to be affected in the same way as Lucy and others like her who are suffering from this rare form of cancer. There is so much more that can be done if more funding is dedicated to research.[/sup][/span][/p] [lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]Lucy was a healthy 8 year old girl when she became very ill with pneumonia in the summer of 2004. It wasn't until a follow up appointment to check that her lungs had cleared three months later, that a large mass was found in her chest.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]A biopsy was done on Lucy's 9th birthday and a week later we were given the news that no parent wants to hear. Our little girl had cancer. Ewing’s soft tissue sarcoma.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]How could this be? Why had this happened to her? Our emotions were all over the place, but we didn't have time to think about our own feelings. Our main focus was getting her through this.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]Chemotherapy (VIDE) was given for nine months and radiotherapy soon followed. Through this sad and torturous time, Lucy remained strong and positive. The side effects to the chemotherapy made Lucy feel terrible. We pushed to get a peg fitted for her, as she was unable to eat properly and had lost so much weight. Through all of this, she missed 18 months of school,but that didn't stop Lucy from striving to achieve her goals.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]Lucy soon went back to school, moved on to secondary school and passed all of her GCSE's with 11 A’s! She had a particular interest in photography, baking and psychology. Her dream was to go to UCL in London to study psychology/criminology. However, halfway through her first year of sixth form, we got more terrible news during a routine check up with her oncologist. Her Cancer had returned in the Spring of 2014, it had come back in the same place as before.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]Another dose of Chemotherapy (VAI) was prescribed with the hope of shrinking it enough to remove the remainder through surgery. Again, Lucy remained positive throughout. Lucy was often neutropenic due to chemotherapy which meant she was could not continue with her school work and was unable to see her closest friends, but despite this, she pushed on with her fight and remained determined. During this time, Lucy planned a Sarcoma UK barbecue that went on to successfully raise £900. Lucy was responsible for all of it, the music, food, invitations, garden decorations and even the Sarcoma UK cake that she baked and decorated herself. She certainly had a talent for organising and planning events.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]I remember one time when I was feeling low, I asked her why this had to happen to her? I will never forget her reply. She said “Why not, it's better me than anyone else”.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]Lucy's chemotherapy lasted for seven months and the surgery soon followed at The Royal Brompton Hospital in Nov 2014. Open heart surgery was carried out in order to remove the mass from her chest. The Surgery was successful, however recovery was very slow. High dosage chemotherapy was an option but as recovery took longer it was decided that it may have caused more harm than it did good. Lucy's kidneys were struggling with treatment and her heart was showing signs of strain due to all the chemotherapy and radiation her body had endured over the years.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]Finally in May 2015, Lucy's Ewing's Sarcoma made a return for the third time. Why had this happened again?? This came as a complete blow and Lucy decided that she did not want any more treatment. We as parents understood and supported her decision as we could see what the chemotherapy had done to her already. All that Lucy was offered at this point was chemotherapy to manage the cancer and to prolong her life, but, what quality of life would the chemo allow Lucy to have? She chose to continue without the chemotherapy and enjoy the time she had left feeling as well as she could. We tried every alternative route we could find, including alternative therapies and clinical trials, but Lucy didn’t want to spend her last few months in and out of a hospital 3-4 days a week taking part in a trial that was unlikely to help her. There really was nothing else out there to help her.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]After Lucy’s terminal prognosis, she remained strong, courageous and positive.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]In July of last year, we had a lovely holiday in Cornwall which she arranged for the family. Our daily activities had been planned by Lucy as well as the evening meals organised and cooked by her. We went to The Eden Project and Lucy went on England's largest zip wire. It was perfect.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]In September, Lucy bought herself a Pomeranian puppy. We felt it would give Lucy something positive to focus on as all of her closest friends were moving away to university. She took on the challenge of a puppy with all the determination that you would expect from Lucy and took her puppy along to obedience school, ensuring that she passed the puppy foundation course.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]Last November Lucy organised a family and pet photo shoot. Again, she arranged everything even down to our outfits. She was the perfect planner of all things.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]Lucy also organised a family hand cast so we would have something to keep and cherish forever.[/sup][/span][/p][span=font-size: medium;] [/span][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]Lucy's 19th birthday was on the 7th December and then she decided to bring our Christmas Day forward to the 8th December, followed by Boxing Day on the 9th. All Christmas food was pre arranged leading up to the day, we even had tasting sessions to make sure that everything was perfect on our Christmas Day. Lucy gave us all presents on Christmas Eve, inside our parcels were our Christmas Day outfits to wear with our our own festive headwear and a candy cane stick. Our Christmas Day was perfect. As we awoke on our Christmas morning, Lucy had already prepared us all a Jamie Oliver Christmas Egg Nog (she was a Jamie Oliver fan) The table was decorated like never before! It was the best Christmas ever. [/sup][/span][/p][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][sup]Eight days later on the 18th December Lucy sadly passed away.[/sup][/span][/p][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;]Since Lucy's passing, we have been recieving weekly Hello Fresh boxes. We wasn't aware of what she had planned. Obviously, Lucy wanted to ensure that those closest to her were eating fresh and wholesome cooked meals. She knew her Mum wasn't the most adventerous of cooks. Lucy had also arranged for bouquets of flowers to be sent to her 17yr old sister on her birthday by surprise and Mum for the following year once a month by Bloom & Wild! [/span][/p][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;]As you can see, Lucy was a very strong, brave and inspiring young girl. With everything she had to contend with in her life, she never stopped thinking of others first and formost. What a true inspiration she was and still is![lt]br /[gt][/span][/p][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][lt]span style="color: #141823; line-height: 17.94px; white-space: pre-wrap;"[gt][sup]The money that we raise will be dedicated to funding research into alternative therapies only, as we are all too aware of the terrible effects that chemotherapy and radiation have on the human body. Our aim is to help discover more treatments that don't harm the vital organs of these children and young adults who are already in such a vulnerable position and ultimately, we hope to find a cure.[/sup][/span][lt]/span[gt][/p][lt]p style="margin: 10px 0px 0px; white-space: pre-wrap; color: #141823; line-height: 17.94px;"[gt][span=font-size: medium;][lt]span style="line-height: 17.94px;"[gt][sup]The logo for this page is one that Lucy designed herself.[/sup][/span][lt]/span[gt][/p][/div]

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Charity

Ewing's Sarcoma Research Trust

Ewing's Sarcoma Research Trust

Supporters

23-Mar-2018

Paul Beadman

With heartfelt sympathy and best wishes in all you do to help.

£50.00 plus £12.50 Gift Aid

14-Mar-2018

Mary Wood

Donation From Miss Mary Wood

£20.00 plus £5.00 Gift Aid

17-Jan-2018

Mrs Sigi Taylor

Donation from Mrs Sigi Taylor

£10.00

15-Jul-2017

Peter Cornforth

Good luck Lucy, I hope you overcome all your problems

£10.00 plus £2.50 Gift Aid

11-Jun-2017

Manish

Well done Naz for completing the colour run yesterday

£20.00 plus £5.00 Gift Aid

09-May-2017

Anonymous

02-Feb-2017

Brenda Stevens

Donation from Brenda Stevens

£5.00

11-Jan-2017

Kieran Twomey

£100.00

27-Nov-2016

Sylvia Marsh

What a sad but inspiring story! Lucy was indeed a daughter and sister to be proud of! I wish you even greater success in your fund-raising.

£10.00 plus £2.50 Gift Aid

25-Oct-2016

Customers & Staffs @ Goffs Oak BOOTS

Money collected from charity box

£141.83